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Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review

Background: During the past few decades there has been a growing interest on the part of many governments in the creation of biobanks. Nevertheless, this would be impossible without participation of many donors who offer samples of their biological material for scientific research. Therefore, the ai...

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Detalles Bibliográficos
Autores principales: Domaradzki, Jan, Pawlikowski, Jakub
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6617000/
https://www.ncbi.nlm.nih.gov/pubmed/31234457
http://dx.doi.org/10.3390/ijerph16122209
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author Domaradzki, Jan
Pawlikowski, Jakub
author_facet Domaradzki, Jan
Pawlikowski, Jakub
author_sort Domaradzki, Jan
collection PubMed
description Background: During the past few decades there has been a growing interest on the part of many governments in the creation of biobanks. Nevertheless, this would be impossible without participation of many donors who offer samples of their biological material for scientific research. Therefore, the aim of this paper is to provide an overview of the existing research on social attitudes towards biobanking. Material and Methods: A literature search was conducted in the database of MEDLINE (PubMed). 61 papers were included in the analysis. The retrieved articles were assessed using a thematic analysis. Results: Eight main themes were identified: (1) public knowledge about biobanks, (2) public views on biobanking, (3) willingness to donate, (4) donors’ motivations, (5) perceived benefits and risks of biobanking, (6) preferred type of consent, (7) trust toward biobanks, and (8) demographic characteristics of potential donors. Conclusions: Although the public lacks knowledge about biobanking, many individuals declare willingness to donate. Their will is influenced by: their knowledge about biobanking, the type of donated tissue, research purpose, concerns over the safety of the data, preferred type of consent, and trust towards biobanks.
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spelling pubmed-66170002019-07-18 Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review Domaradzki, Jan Pawlikowski, Jakub Int J Environ Res Public Health Review Background: During the past few decades there has been a growing interest on the part of many governments in the creation of biobanks. Nevertheless, this would be impossible without participation of many donors who offer samples of their biological material for scientific research. Therefore, the aim of this paper is to provide an overview of the existing research on social attitudes towards biobanking. Material and Methods: A literature search was conducted in the database of MEDLINE (PubMed). 61 papers were included in the analysis. The retrieved articles were assessed using a thematic analysis. Results: Eight main themes were identified: (1) public knowledge about biobanks, (2) public views on biobanking, (3) willingness to donate, (4) donors’ motivations, (5) perceived benefits and risks of biobanking, (6) preferred type of consent, (7) trust toward biobanks, and (8) demographic characteristics of potential donors. Conclusions: Although the public lacks knowledge about biobanking, many individuals declare willingness to donate. Their will is influenced by: their knowledge about biobanking, the type of donated tissue, research purpose, concerns over the safety of the data, preferred type of consent, and trust towards biobanks. MDPI 2019-06-21 2019-06 /pmc/articles/PMC6617000/ /pubmed/31234457 http://dx.doi.org/10.3390/ijerph16122209 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Review
Domaradzki, Jan
Pawlikowski, Jakub
Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review
title Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review
title_full Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review
title_fullStr Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review
title_full_unstemmed Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review
title_short Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review
title_sort public attitudes toward biobanking of human biological material for research purposes: a literature review
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6617000/
https://www.ncbi.nlm.nih.gov/pubmed/31234457
http://dx.doi.org/10.3390/ijerph16122209
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