Quantitative analysis of a rare disease network’s international contact database and E-repository provides insights into biobanking in the electronic consent era

BACKGROUND: Castleman disease (CD) describes a group of rare and poorly understood lymphoproliferative disorders that include unicentric CD (UCD), Human Herpes Virus-8 (HHV8)-associated multicentric CD (HHV8 + MCD), and HHV8-negative/idiopathic MCD (iMCD). Efforts to advance research and drug discov...

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Detalles Bibliográficos
Autores principales: Suarez, Alexander, Reilly, Curran, Fajgenbaum, David C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6625003/
https://www.ncbi.nlm.nih.gov/pubmed/31296233
http://dx.doi.org/10.1186/s13023-019-1145-y

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