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Healthcare burden among individuals with Angelman syndrome: Findings from the Angelman Syndrome Natural History Study
BACKGROUND: The objective of this study is to describe healthcare resource utilization (HRU) and supportive therapy utilization (STU) among individuals with Angelman syndrome (AS), and to compare such usage by molecular etiology. METHODS: Participants were categorized into deletion and non‐deletion...
Autores principales: | Khan, Nasreen, Cabo, Raquel, Tan, Wen‐Hann, Tayag, Regina, Bird, Lynne M. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6625091/ https://www.ncbi.nlm.nih.gov/pubmed/31090212 http://dx.doi.org/10.1002/mgg3.734 |
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