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Experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan: A qualitative study

PURPOSE: In the era of antiretroviral treatment (ART), treatment of HIV has become more manageable, and most patients with HIV benefit from long-term therapy in Japan. The aim of this qualitative study was to examine the experiences of patients with HIV/AIDS receiving mid- and long-term care in Japa...

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Autores principales: Imazu, Yoko, Matsuyama, Nao, Takebayashi, Sanae, Mori, Mizue, Watabe, Setsuko
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Chinese Nursing Association 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6626098/
https://www.ncbi.nlm.nih.gov/pubmed/31406727
http://dx.doi.org/10.1016/j.ijnss.2017.02.004
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author Imazu, Yoko
Matsuyama, Nao
Takebayashi, Sanae
Mori, Mizue
Watabe, Setsuko
author_facet Imazu, Yoko
Matsuyama, Nao
Takebayashi, Sanae
Mori, Mizue
Watabe, Setsuko
author_sort Imazu, Yoko
collection PubMed
description PURPOSE: In the era of antiretroviral treatment (ART), treatment of HIV has become more manageable, and most patients with HIV benefit from long-term therapy in Japan. The aim of this qualitative study was to examine the experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan. METHODS: A qualitative study was performed using semi-structured interviews at an outpatient clinic of a university hospital in the Greater Tokyo area. A total of 31 Japanese patients with HIV who had been receiving treatment for at least a year were interviewed in Japanese. Data from these interviews were analyzed by ‘content analysis’ (Krippendorff, 1980). RESULTS: The data were organized into the following seven themes: “feelings toward diagnosis of HIV infection”; “perceptions and behavior after diagnosis of HIV”; “attitudes toward HIV therapy”; “fear and hope for the future”; “feelings toward professional support”; “life changes after HIV therapy”; and “struggles in relationships with others”. CONCLUSIONS: Some participants accepted themselves as HIV-positive, some did not when they were diagnosis. This difference of reaction had effect on attitudes toward HIV therapy. But all participants continued mid- and long-treatments owing to feeling well and receiving support from professionals. Additionally, it found that patients were felt stigma of HIV-positive similarly to another Asian countries. Therefore, we should provide the entire Japanese society with knowledge about HIV/AIDS and be early and constant intervention by professional teams after being infected.
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spelling pubmed-66260982019-08-12 Experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan: A qualitative study Imazu, Yoko Matsuyama, Nao Takebayashi, Sanae Mori, Mizue Watabe, Setsuko Int J Nurs Sci Original Article PURPOSE: In the era of antiretroviral treatment (ART), treatment of HIV has become more manageable, and most patients with HIV benefit from long-term therapy in Japan. The aim of this qualitative study was to examine the experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan. METHODS: A qualitative study was performed using semi-structured interviews at an outpatient clinic of a university hospital in the Greater Tokyo area. A total of 31 Japanese patients with HIV who had been receiving treatment for at least a year were interviewed in Japanese. Data from these interviews were analyzed by ‘content analysis’ (Krippendorff, 1980). RESULTS: The data were organized into the following seven themes: “feelings toward diagnosis of HIV infection”; “perceptions and behavior after diagnosis of HIV”; “attitudes toward HIV therapy”; “fear and hope for the future”; “feelings toward professional support”; “life changes after HIV therapy”; and “struggles in relationships with others”. CONCLUSIONS: Some participants accepted themselves as HIV-positive, some did not when they were diagnosis. This difference of reaction had effect on attitudes toward HIV therapy. But all participants continued mid- and long-treatments owing to feeling well and receiving support from professionals. Additionally, it found that patients were felt stigma of HIV-positive similarly to another Asian countries. Therefore, we should provide the entire Japanese society with knowledge about HIV/AIDS and be early and constant intervention by professional teams after being infected. Chinese Nursing Association 2017-03-02 /pmc/articles/PMC6626098/ /pubmed/31406727 http://dx.doi.org/10.1016/j.ijnss.2017.02.004 Text en © 2017 Chinese Nursing Association. Production and hosting by Elsevier B.V. http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Original Article
Imazu, Yoko
Matsuyama, Nao
Takebayashi, Sanae
Mori, Mizue
Watabe, Setsuko
Experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan: A qualitative study
title Experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan: A qualitative study
title_full Experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan: A qualitative study
title_fullStr Experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan: A qualitative study
title_full_unstemmed Experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan: A qualitative study
title_short Experiences of patients with HIV/AIDS receiving mid- and long-term care in Japan: A qualitative study
title_sort experiences of patients with hiv/aids receiving mid- and long-term care in japan: a qualitative study
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6626098/
https://www.ncbi.nlm.nih.gov/pubmed/31406727
http://dx.doi.org/10.1016/j.ijnss.2017.02.004
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