Cargando…
RD-RAP: beyond rare disease patient registries, devising a comprehensive data and analytic framework
Within the 21 APEC economies alone, there are an estimated 200 million individuals living with a rare disease. As such, health data on these individuals, and hence patient registries, are vital. However, registries can come in many different forms and operating models in different jurisdictions. The...
| Autores principales: | , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2019
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6626403/ https://www.ncbi.nlm.nih.gov/pubmed/31300021 http://dx.doi.org/10.1186/s13023-019-1139-9 |