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Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics
Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to e...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6630770/ https://www.ncbi.nlm.nih.gov/pubmed/31083488 http://dx.doi.org/10.3390/geriatrics4020035 |
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author | Lindquist, Lee A. Seltzer, Anne Forcucci, Chris Wong, Norine Ramirez-Zohfeld, Vanessa |
author_facet | Lindquist, Lee A. Seltzer, Anne Forcucci, Chris Wong, Norine Ramirez-Zohfeld, Vanessa |
author_sort | Lindquist, Lee A. |
collection | PubMed |
description | Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to examine the experiences of patient/community partners in disseminating PCOR results and characterize lessons learned that may facilitate future researcher-patient/community dissemination partnerships. Methods: Patient/community partners who participated in geriatrics-focused PCORI-funded research and were active in disseminating results, as part of their planned activities, were recruited for one-to-one qualitative interviews. Constant comparative and thematic analysis were used to identify and describe common themes that emerged in a survey of open-ended questions. Results: Ten individuals (four community partners, six patients) aged 55–87 years were interviewed. Analysis revealed that for successful dissemination, subjects felt it was vital to reach out to people affected by the results, leverage personal stories, and tap into pre-developed programming. Patient/Community partners identified potential audiences through word-of-mouth, community requests, and mapping a list of audiences—targeting those directly affected as well as those who worked with the audience (e.g., not specifically medical). Patient/community partners recommended that researchers engage patient/community partners for suggestions on audiences, show empathy, include diverse populations, and maintain a community-focus. One community partner stated, “Why wouldn’t we help disseminate results? It’s a no-brainer. We know people!” Conclusion: Patient/community partners provide effective ways to communicate results, new audiences to reach, improved communication with different audiences, and improved credibility of the findings. The lessons learned have implications for assisting future research-patient/community partnerships in the dissemination of their patient-centered research. |
format | Online Article Text |
id | pubmed-6630770 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-66307702019-08-19 Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics Lindquist, Lee A. Seltzer, Anne Forcucci, Chris Wong, Norine Ramirez-Zohfeld, Vanessa Geriatrics (Basel) Article Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to examine the experiences of patient/community partners in disseminating PCOR results and characterize lessons learned that may facilitate future researcher-patient/community dissemination partnerships. Methods: Patient/community partners who participated in geriatrics-focused PCORI-funded research and were active in disseminating results, as part of their planned activities, were recruited for one-to-one qualitative interviews. Constant comparative and thematic analysis were used to identify and describe common themes that emerged in a survey of open-ended questions. Results: Ten individuals (four community partners, six patients) aged 55–87 years were interviewed. Analysis revealed that for successful dissemination, subjects felt it was vital to reach out to people affected by the results, leverage personal stories, and tap into pre-developed programming. Patient/Community partners identified potential audiences through word-of-mouth, community requests, and mapping a list of audiences—targeting those directly affected as well as those who worked with the audience (e.g., not specifically medical). Patient/community partners recommended that researchers engage patient/community partners for suggestions on audiences, show empathy, include diverse populations, and maintain a community-focus. One community partner stated, “Why wouldn’t we help disseminate results? It’s a no-brainer. We know people!” Conclusion: Patient/community partners provide effective ways to communicate results, new audiences to reach, improved communication with different audiences, and improved credibility of the findings. The lessons learned have implications for assisting future research-patient/community partnerships in the dissemination of their patient-centered research. MDPI 2019-05-11 /pmc/articles/PMC6630770/ /pubmed/31083488 http://dx.doi.org/10.3390/geriatrics4020035 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Lindquist, Lee A. Seltzer, Anne Forcucci, Chris Wong, Norine Ramirez-Zohfeld, Vanessa Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics |
title | Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics |
title_full | Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics |
title_fullStr | Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics |
title_full_unstemmed | Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics |
title_short | Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics |
title_sort | leveraging patient/community partnerships to disseminate patient centered outcomes research in geriatrics |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6630770/ https://www.ncbi.nlm.nih.gov/pubmed/31083488 http://dx.doi.org/10.3390/geriatrics4020035 |
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