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Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics

Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to e...

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Autores principales: Lindquist, Lee A., Seltzer, Anne, Forcucci, Chris, Wong, Norine, Ramirez-Zohfeld, Vanessa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6630770/
https://www.ncbi.nlm.nih.gov/pubmed/31083488
http://dx.doi.org/10.3390/geriatrics4020035
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author Lindquist, Lee A.
Seltzer, Anne
Forcucci, Chris
Wong, Norine
Ramirez-Zohfeld, Vanessa
author_facet Lindquist, Lee A.
Seltzer, Anne
Forcucci, Chris
Wong, Norine
Ramirez-Zohfeld, Vanessa
author_sort Lindquist, Lee A.
collection PubMed
description Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to examine the experiences of patient/community partners in disseminating PCOR results and characterize lessons learned that may facilitate future researcher-patient/community dissemination partnerships. Methods: Patient/community partners who participated in geriatrics-focused PCORI-funded research and were active in disseminating results, as part of their planned activities, were recruited for one-to-one qualitative interviews. Constant comparative and thematic analysis were used to identify and describe common themes that emerged in a survey of open-ended questions. Results: Ten individuals (four community partners, six patients) aged 55–87 years were interviewed. Analysis revealed that for successful dissemination, subjects felt it was vital to reach out to people affected by the results, leverage personal stories, and tap into pre-developed programming. Patient/Community partners identified potential audiences through word-of-mouth, community requests, and mapping a list of audiences—targeting those directly affected as well as those who worked with the audience (e.g., not specifically medical). Patient/community partners recommended that researchers engage patient/community partners for suggestions on audiences, show empathy, include diverse populations, and maintain a community-focus. One community partner stated, “Why wouldn’t we help disseminate results? It’s a no-brainer. We know people!” Conclusion: Patient/community partners provide effective ways to communicate results, new audiences to reach, improved communication with different audiences, and improved credibility of the findings. The lessons learned have implications for assisting future research-patient/community partnerships in the dissemination of their patient-centered research.
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spelling pubmed-66307702019-08-19 Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics Lindquist, Lee A. Seltzer, Anne Forcucci, Chris Wong, Norine Ramirez-Zohfeld, Vanessa Geriatrics (Basel) Article Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to examine the experiences of patient/community partners in disseminating PCOR results and characterize lessons learned that may facilitate future researcher-patient/community dissemination partnerships. Methods: Patient/community partners who participated in geriatrics-focused PCORI-funded research and were active in disseminating results, as part of their planned activities, were recruited for one-to-one qualitative interviews. Constant comparative and thematic analysis were used to identify and describe common themes that emerged in a survey of open-ended questions. Results: Ten individuals (four community partners, six patients) aged 55–87 years were interviewed. Analysis revealed that for successful dissemination, subjects felt it was vital to reach out to people affected by the results, leverage personal stories, and tap into pre-developed programming. Patient/Community partners identified potential audiences through word-of-mouth, community requests, and mapping a list of audiences—targeting those directly affected as well as those who worked with the audience (e.g., not specifically medical). Patient/community partners recommended that researchers engage patient/community partners for suggestions on audiences, show empathy, include diverse populations, and maintain a community-focus. One community partner stated, “Why wouldn’t we help disseminate results? It’s a no-brainer. We know people!” Conclusion: Patient/community partners provide effective ways to communicate results, new audiences to reach, improved communication with different audiences, and improved credibility of the findings. The lessons learned have implications for assisting future research-patient/community partnerships in the dissemination of their patient-centered research. MDPI 2019-05-11 /pmc/articles/PMC6630770/ /pubmed/31083488 http://dx.doi.org/10.3390/geriatrics4020035 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Lindquist, Lee A.
Seltzer, Anne
Forcucci, Chris
Wong, Norine
Ramirez-Zohfeld, Vanessa
Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics
title Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics
title_full Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics
title_fullStr Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics
title_full_unstemmed Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics
title_short Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics
title_sort leveraging patient/community partnerships to disseminate patient centered outcomes research in geriatrics
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6630770/
https://www.ncbi.nlm.nih.gov/pubmed/31083488
http://dx.doi.org/10.3390/geriatrics4020035
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