Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study

BACKGROUND: We designed and initiated a pilot comparative effectiveness study for juvenile localized scleroderma (jLS), for which there is limited evidence on best therapy. We evaluated the process we used, in relation to the specific protocol and to the general task of identifying strategies for im...

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Detalles Bibliográficos
Autores principales: Li, Suzanne C., Fuhlbrigge, Robert C., Laxer, Ronald M., Pope, Elena, Ibarra, Maria F., Stewart, Katie, Mason, Thomas, Becker, Mara L., Hong, Sandy, Dedeoglu, Fatma, Torok, Kathryn S., Rabinovich, C. Egla, Ferguson, Polly J., Punaro, Marilynn, Feldman, Brian M., Andrews, Tracy, Higgins, Gloria C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6632199/
https://www.ncbi.nlm.nih.gov/pubmed/31307476
http://dx.doi.org/10.1186/s12969-019-0350-5

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