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The Danish health care system and epidemiological research: from health care contacts to database records

Denmark has a large network of population-based medical databases, which routinely collect high-quality data as a by-product of health care provision. The Danish medical databases include administrative, health, and clinical quality databases. Understanding the full research potential of these data...

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Autores principales: Schmidt, Morten, Schmidt, Sigrun Alba Johannesdottir, Adelborg, Kasper, Sundbøll, Jens, Laugesen, Kristina, Ehrenstein, Vera, Sørensen, Henrik Toft
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6634267/
https://www.ncbi.nlm.nih.gov/pubmed/31372058
http://dx.doi.org/10.2147/CLEP.S179083
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author Schmidt, Morten
Schmidt, Sigrun Alba Johannesdottir
Adelborg, Kasper
Sundbøll, Jens
Laugesen, Kristina
Ehrenstein, Vera
Sørensen, Henrik Toft
author_facet Schmidt, Morten
Schmidt, Sigrun Alba Johannesdottir
Adelborg, Kasper
Sundbøll, Jens
Laugesen, Kristina
Ehrenstein, Vera
Sørensen, Henrik Toft
author_sort Schmidt, Morten
collection PubMed
description Denmark has a large network of population-based medical databases, which routinely collect high-quality data as a by-product of health care provision. The Danish medical databases include administrative, health, and clinical quality databases. Understanding the full research potential of these data sources requires insight into the underlying health care system. This review describes key elements of the Danish health care system from planning and delivery to record generation. First, it presents the history of the health care system, its overall organization and financing. Second, it details delivery of primary, hospital, psychiatric, and elderly care. Third, the path from a health care contact to a database record is followed. Finally, an overview of the available data sources is presented. This review discusses the data quality of each type of medical database and describes the relative technical ease and cost-effectiveness of exact individual-level linkage among them. It is shown, from an epidemiological point of view, how Denmark’s population represents an open dynamic cohort with complete long-term follow-up, censored only at emigration or death. It is concluded that Denmark’s constellation of universal health care, long-standing routine registration of most health and life events, and the possibility of exact individual-level data linkage provides unlimited possibilities for epidemiological research.
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spelling pubmed-66342672019-08-01 The Danish health care system and epidemiological research: from health care contacts to database records Schmidt, Morten Schmidt, Sigrun Alba Johannesdottir Adelborg, Kasper Sundbøll, Jens Laugesen, Kristina Ehrenstein, Vera Sørensen, Henrik Toft Clin Epidemiol Review Denmark has a large network of population-based medical databases, which routinely collect high-quality data as a by-product of health care provision. The Danish medical databases include administrative, health, and clinical quality databases. Understanding the full research potential of these data sources requires insight into the underlying health care system. This review describes key elements of the Danish health care system from planning and delivery to record generation. First, it presents the history of the health care system, its overall organization and financing. Second, it details delivery of primary, hospital, psychiatric, and elderly care. Third, the path from a health care contact to a database record is followed. Finally, an overview of the available data sources is presented. This review discusses the data quality of each type of medical database and describes the relative technical ease and cost-effectiveness of exact individual-level linkage among them. It is shown, from an epidemiological point of view, how Denmark’s population represents an open dynamic cohort with complete long-term follow-up, censored only at emigration or death. It is concluded that Denmark’s constellation of universal health care, long-standing routine registration of most health and life events, and the possibility of exact individual-level data linkage provides unlimited possibilities for epidemiological research. Dove 2019-07-12 /pmc/articles/PMC6634267/ /pubmed/31372058 http://dx.doi.org/10.2147/CLEP.S179083 Text en © 2019 Schmidt et al. http://creativecommons.org/licenses/by-nc/3.0/ This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms (https://www.dovepress.com/terms.php).
spellingShingle Review
Schmidt, Morten
Schmidt, Sigrun Alba Johannesdottir
Adelborg, Kasper
Sundbøll, Jens
Laugesen, Kristina
Ehrenstein, Vera
Sørensen, Henrik Toft
The Danish health care system and epidemiological research: from health care contacts to database records
title The Danish health care system and epidemiological research: from health care contacts to database records
title_full The Danish health care system and epidemiological research: from health care contacts to database records
title_fullStr The Danish health care system and epidemiological research: from health care contacts to database records
title_full_unstemmed The Danish health care system and epidemiological research: from health care contacts to database records
title_short The Danish health care system and epidemiological research: from health care contacts to database records
title_sort danish health care system and epidemiological research: from health care contacts to database records
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6634267/
https://www.ncbi.nlm.nih.gov/pubmed/31372058
http://dx.doi.org/10.2147/CLEP.S179083
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