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Impact of caring for someone with a rare rheumatic condition, views from patients and informal carers—the need for cat-like vigilance

OBJECTIVE: ANCA-associated vasculitis (AAV) is a rare multisystem disease. Modern therapeutic protocols have turned AAV from an acute, frequently fatal disease into a chronic disease requiring long-term immunosuppression. Patients must often manage substantial burdens related to chronic illness and...

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Detalles Bibliográficos
Autores principales: Mooney, Janice, Graham, Karly, Watts, Richard A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6649977/
https://www.ncbi.nlm.nih.gov/pubmed/31431991
http://dx.doi.org/10.1093/rap/rkz003