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Impact of caring for someone with a rare rheumatic condition, views from patients and informal carers—the need for cat-like vigilance
OBJECTIVE: ANCA-associated vasculitis (AAV) is a rare multisystem disease. Modern therapeutic protocols have turned AAV from an acute, frequently fatal disease into a chronic disease requiring long-term immunosuppression. Patients must often manage substantial burdens related to chronic illness and...
Autores principales: | Mooney, Janice, Graham, Karly, Watts, Richard A |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6649977/ https://www.ncbi.nlm.nih.gov/pubmed/31431991 http://dx.doi.org/10.1093/rap/rkz003 |
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