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Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings

OBJECTIVE: Family caregivers are the default caring personnel for terminal cancer patients. The characteristics, demographics, distribution, psychological burden, and socioeconomic standards differ between high- and low-income countries. We aimed to assess those factors and their direct reflection o...

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Autores principales: Abdel-Malek, Raafat, Farag, Dina E., Shohdy, Kyrillus S., Cox, Sarah
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6659530/
https://www.ncbi.nlm.nih.gov/pubmed/31413452
http://dx.doi.org/10.4103/IJPC.IJPC_199_18
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author Abdel-Malek, Raafat
Farag, Dina E.
Shohdy, Kyrillus S.
Cox, Sarah
author_facet Abdel-Malek, Raafat
Farag, Dina E.
Shohdy, Kyrillus S.
Cox, Sarah
author_sort Abdel-Malek, Raafat
collection PubMed
description OBJECTIVE: Family caregivers are the default caring personnel for terminal cancer patients. The characteristics, demographics, distribution, psychological burden, and socioeconomic standards differ between high- and low-income countries. We aimed to assess those factors and their direct reflection on both the patient and the caregiver. PATIENTS AND METHODS: This is a comparative cross-sectional study for terminal cancer patients in the palliative care unit between the United Kingdom (UK) as a high-income community and Egypt as a low-income community. We assessed the different characteristics, demographics, living place, the degree of relevance, and the availability of caregivers. RESULTS: We have recruited 216 patients from the UK and 117 patients from Egypt. Informal caregivers were available in 74.5% and 92.3% for these patients with a mean age of 71.5 (standard deviation [SD] 16) years and 50.9 (SD 15.18) years, respectively. There has been a statistically significant difference between the two countries’ caregivers in being married, family, and living in the same household (P < 0.0001). CONCLUSION: Low-income countries are more common to have an informal caregiver who is a family member of different degree of relevance. Caregivers in low-income settings tend to be younger, of the female gender, married, and living in the same household than in high-income ones.
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spelling pubmed-66595302019-08-14 Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings Abdel-Malek, Raafat Farag, Dina E. Shohdy, Kyrillus S. Cox, Sarah Indian J Palliat Care Original Article OBJECTIVE: Family caregivers are the default caring personnel for terminal cancer patients. The characteristics, demographics, distribution, psychological burden, and socioeconomic standards differ between high- and low-income countries. We aimed to assess those factors and their direct reflection on both the patient and the caregiver. PATIENTS AND METHODS: This is a comparative cross-sectional study for terminal cancer patients in the palliative care unit between the United Kingdom (UK) as a high-income community and Egypt as a low-income community. We assessed the different characteristics, demographics, living place, the degree of relevance, and the availability of caregivers. RESULTS: We have recruited 216 patients from the UK and 117 patients from Egypt. Informal caregivers were available in 74.5% and 92.3% for these patients with a mean age of 71.5 (standard deviation [SD] 16) years and 50.9 (SD 15.18) years, respectively. There has been a statistically significant difference between the two countries’ caregivers in being married, family, and living in the same household (P < 0.0001). CONCLUSION: Low-income countries are more common to have an informal caregiver who is a family member of different degree of relevance. Caregivers in low-income settings tend to be younger, of the female gender, married, and living in the same household than in high-income ones. Wolters Kluwer - Medknow 2019 /pmc/articles/PMC6659530/ /pubmed/31413452 http://dx.doi.org/10.4103/IJPC.IJPC_199_18 Text en Copyright: © 2019 Indian Journal of Palliative Care http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Abdel-Malek, Raafat
Farag, Dina E.
Shohdy, Kyrillus S.
Cox, Sarah
Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings
title Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings
title_full Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings
title_fullStr Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings
title_full_unstemmed Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings
title_short Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings
title_sort availability of informal caregivers for palliative care patients with cancer: is there a difference between higher- and lower-income settings
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6659530/
https://www.ncbi.nlm.nih.gov/pubmed/31413452
http://dx.doi.org/10.4103/IJPC.IJPC_199_18
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