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What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective

INTRODUCTION: Health systems are striving to design and deliver care that is ‘person centred’—aligned with the needs and preferences of those receiving it; however, it is unclear what older people and their caregivers value in their care. This paper captures attributes of care that are important to...

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Autores principales: Kuluski, Kerry, Peckham, Allie, Gill, Ashlinder, Gagnon, Dominique, Wong-Cornall, Cecilia, McKillop, Ann, Parsons, John, Sheridan, Nicolette
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Ubiquity Press 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6659759/
https://www.ncbi.nlm.nih.gov/pubmed/31367203
http://dx.doi.org/10.5334/ijic.4655
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author Kuluski, Kerry
Peckham, Allie
Gill, Ashlinder
Gagnon, Dominique
Wong-Cornall, Cecilia
McKillop, Ann
Parsons, John
Sheridan, Nicolette
author_facet Kuluski, Kerry
Peckham, Allie
Gill, Ashlinder
Gagnon, Dominique
Wong-Cornall, Cecilia
McKillop, Ann
Parsons, John
Sheridan, Nicolette
author_sort Kuluski, Kerry
collection PubMed
description INTRODUCTION: Health systems are striving to design and deliver care that is ‘person centred’—aligned with the needs and preferences of those receiving it; however, it is unclear what older people and their caregivers value in their care. This paper captures attributes of care that are important to older people and their caregivers. METHODS: This qualitative descriptive study entailed 1–1 interviews with older adults with multimorbidity receiving community based primary health care in Canada and New Zealand and caregivers. Data were analyzed to identify core attributes of care, important to participants. FINDINGS: Feeling heard, appreciated and comfortable; having someone to count on; easily accessing health and social care; knowing how to manage health and what to expect; feeling safe; and being independent were valued. Each attribute had several characteristics including: being treated like a friend; having contact information of a responsive provider; being accompanied to medical and social activities; being given clear treatment options including what to expect; having homes adapted to support limitations and having the opportunity to participate in meaningful hobbies. CONCLUSIONS: Attributes of good care extend beyond disease management. While our findings include activities that characterize these attributes, further research on implementation barriers and facilitators is required.
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spelling pubmed-66597592019-07-31 What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective Kuluski, Kerry Peckham, Allie Gill, Ashlinder Gagnon, Dominique Wong-Cornall, Cecilia McKillop, Ann Parsons, John Sheridan, Nicolette Int J Integr Care Research and Theory INTRODUCTION: Health systems are striving to design and deliver care that is ‘person centred’—aligned with the needs and preferences of those receiving it; however, it is unclear what older people and their caregivers value in their care. This paper captures attributes of care that are important to older people and their caregivers. METHODS: This qualitative descriptive study entailed 1–1 interviews with older adults with multimorbidity receiving community based primary health care in Canada and New Zealand and caregivers. Data were analyzed to identify core attributes of care, important to participants. FINDINGS: Feeling heard, appreciated and comfortable; having someone to count on; easily accessing health and social care; knowing how to manage health and what to expect; feeling safe; and being independent were valued. Each attribute had several characteristics including: being treated like a friend; having contact information of a responsive provider; being accompanied to medical and social activities; being given clear treatment options including what to expect; having homes adapted to support limitations and having the opportunity to participate in meaningful hobbies. CONCLUSIONS: Attributes of good care extend beyond disease management. While our findings include activities that characterize these attributes, further research on implementation barriers and facilitators is required. Ubiquity Press 2019-07-23 /pmc/articles/PMC6659759/ /pubmed/31367203 http://dx.doi.org/10.5334/ijic.4655 Text en Copyright: © 2019 The Author(s) http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/4.0/.
spellingShingle Research and Theory
Kuluski, Kerry
Peckham, Allie
Gill, Ashlinder
Gagnon, Dominique
Wong-Cornall, Cecilia
McKillop, Ann
Parsons, John
Sheridan, Nicolette
What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective
title What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective
title_full What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective
title_fullStr What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective
title_full_unstemmed What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective
title_short What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective
title_sort what is important to older people with multimorbidity and their caregivers? identifying attributes of person centered care from the user perspective
topic Research and Theory
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6659759/
https://www.ncbi.nlm.nih.gov/pubmed/31367203
http://dx.doi.org/10.5334/ijic.4655
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