Cargando…
What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective
INTRODUCTION: Health systems are striving to design and deliver care that is ‘person centred’—aligned with the needs and preferences of those receiving it; however, it is unclear what older people and their caregivers value in their care. This paper captures attributes of care that are important to...
Autores principales: | , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Ubiquity Press
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6659759/ https://www.ncbi.nlm.nih.gov/pubmed/31367203 http://dx.doi.org/10.5334/ijic.4655 |
_version_ | 1783439192558141440 |
---|---|
author | Kuluski, Kerry Peckham, Allie Gill, Ashlinder Gagnon, Dominique Wong-Cornall, Cecilia McKillop, Ann Parsons, John Sheridan, Nicolette |
author_facet | Kuluski, Kerry Peckham, Allie Gill, Ashlinder Gagnon, Dominique Wong-Cornall, Cecilia McKillop, Ann Parsons, John Sheridan, Nicolette |
author_sort | Kuluski, Kerry |
collection | PubMed |
description | INTRODUCTION: Health systems are striving to design and deliver care that is ‘person centred’—aligned with the needs and preferences of those receiving it; however, it is unclear what older people and their caregivers value in their care. This paper captures attributes of care that are important to older people and their caregivers. METHODS: This qualitative descriptive study entailed 1–1 interviews with older adults with multimorbidity receiving community based primary health care in Canada and New Zealand and caregivers. Data were analyzed to identify core attributes of care, important to participants. FINDINGS: Feeling heard, appreciated and comfortable; having someone to count on; easily accessing health and social care; knowing how to manage health and what to expect; feeling safe; and being independent were valued. Each attribute had several characteristics including: being treated like a friend; having contact information of a responsive provider; being accompanied to medical and social activities; being given clear treatment options including what to expect; having homes adapted to support limitations and having the opportunity to participate in meaningful hobbies. CONCLUSIONS: Attributes of good care extend beyond disease management. While our findings include activities that characterize these attributes, further research on implementation barriers and facilitators is required. |
format | Online Article Text |
id | pubmed-6659759 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Ubiquity Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-66597592019-07-31 What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective Kuluski, Kerry Peckham, Allie Gill, Ashlinder Gagnon, Dominique Wong-Cornall, Cecilia McKillop, Ann Parsons, John Sheridan, Nicolette Int J Integr Care Research and Theory INTRODUCTION: Health systems are striving to design and deliver care that is ‘person centred’—aligned with the needs and preferences of those receiving it; however, it is unclear what older people and their caregivers value in their care. This paper captures attributes of care that are important to older people and their caregivers. METHODS: This qualitative descriptive study entailed 1–1 interviews with older adults with multimorbidity receiving community based primary health care in Canada and New Zealand and caregivers. Data were analyzed to identify core attributes of care, important to participants. FINDINGS: Feeling heard, appreciated and comfortable; having someone to count on; easily accessing health and social care; knowing how to manage health and what to expect; feeling safe; and being independent were valued. Each attribute had several characteristics including: being treated like a friend; having contact information of a responsive provider; being accompanied to medical and social activities; being given clear treatment options including what to expect; having homes adapted to support limitations and having the opportunity to participate in meaningful hobbies. CONCLUSIONS: Attributes of good care extend beyond disease management. While our findings include activities that characterize these attributes, further research on implementation barriers and facilitators is required. Ubiquity Press 2019-07-23 /pmc/articles/PMC6659759/ /pubmed/31367203 http://dx.doi.org/10.5334/ijic.4655 Text en Copyright: © 2019 The Author(s) http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/4.0/. |
spellingShingle | Research and Theory Kuluski, Kerry Peckham, Allie Gill, Ashlinder Gagnon, Dominique Wong-Cornall, Cecilia McKillop, Ann Parsons, John Sheridan, Nicolette What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective |
title | What is Important to Older People with Multimorbidity and Their
Caregivers? Identifying Attributes of Person Centered Care from the User
Perspective |
title_full | What is Important to Older People with Multimorbidity and Their
Caregivers? Identifying Attributes of Person Centered Care from the User
Perspective |
title_fullStr | What is Important to Older People with Multimorbidity and Their
Caregivers? Identifying Attributes of Person Centered Care from the User
Perspective |
title_full_unstemmed | What is Important to Older People with Multimorbidity and Their
Caregivers? Identifying Attributes of Person Centered Care from the User
Perspective |
title_short | What is Important to Older People with Multimorbidity and Their
Caregivers? Identifying Attributes of Person Centered Care from the User
Perspective |
title_sort | what is important to older people with multimorbidity and their
caregivers? identifying attributes of person centered care from the user
perspective |
topic | Research and Theory |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6659759/ https://www.ncbi.nlm.nih.gov/pubmed/31367203 http://dx.doi.org/10.5334/ijic.4655 |
work_keys_str_mv | AT kuluskikerry whatisimportanttoolderpeoplewithmultimorbidityandtheircaregiversidentifyingattributesofpersoncenteredcarefromtheuserperspective AT peckhamallie whatisimportanttoolderpeoplewithmultimorbidityandtheircaregiversidentifyingattributesofpersoncenteredcarefromtheuserperspective AT gillashlinder whatisimportanttoolderpeoplewithmultimorbidityandtheircaregiversidentifyingattributesofpersoncenteredcarefromtheuserperspective AT gagnondominique whatisimportanttoolderpeoplewithmultimorbidityandtheircaregiversidentifyingattributesofpersoncenteredcarefromtheuserperspective AT wongcornallcecilia whatisimportanttoolderpeoplewithmultimorbidityandtheircaregiversidentifyingattributesofpersoncenteredcarefromtheuserperspective AT mckillopann whatisimportanttoolderpeoplewithmultimorbidityandtheircaregiversidentifyingattributesofpersoncenteredcarefromtheuserperspective AT parsonsjohn whatisimportanttoolderpeoplewithmultimorbidityandtheircaregiversidentifyingattributesofpersoncenteredcarefromtheuserperspective AT sheridannicolette whatisimportanttoolderpeoplewithmultimorbidityandtheircaregiversidentifyingattributesofpersoncenteredcarefromtheuserperspective |