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Consumer-Mediated Data Exchange for Research: Current State of US Law, Technology, and Trust
A compendium of US laws and regulations offers increasingly strong support for the concept that researchers can acquire the electronic health record data that their studies need directly from the study participants using technologies and processes called consumer-mediated data exchange. This data ac...
Autores principales: | Bracha, Yiscah, Bagwell, Jacqueline, Furberg, Robert, Wald, Jonathan S |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6682295/ https://www.ncbi.nlm.nih.gov/pubmed/30946692 http://dx.doi.org/10.2196/12348 |
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