Cargando…

Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-method process evaluation study (the STEPSTONES project)

INTRODUCTION: Today, the majority of young persons living with chronic conditions in high-income countries survive into adulthood and will need life-long medical follow-up. Therefore, transition programmes have been developed to facilitate transfer to adult care, and to support self-management and i...

Descripción completa

Detalles Bibliográficos
Autores principales:	Saarijärvi, Markus, Wallin, Lars, Moons, Philip, Gyllensten, Hanna, Bratt, Ewa-Lena
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2019
Materias:	Health Services Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6687006/ https://www.ncbi.nlm.nih.gov/pubmed/31377699 http://dx.doi.org/10.1136/bmjopen-2018-028229

Ejemplares similares

Implementation fidelity of a transition program for adolescents with congenital heart disease: the STEPSTONES project
por: Saarijärvi, Markus, et al.
Publicado: (2022)

Mechanisms of impact and experiences of a person-centred transition programme for adolescents with CHD: the Stepstones project
por: Saarijärvi, Markus, et al.
Publicado: (2021)

Factors affecting adolescents’ participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES project
por: Saarijärvi, Markus, et al.
Publicado: (2020)

Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES project)
por: Acuña Mora, Mariela, et al.
Publicado: (2017)

Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol
por: Brorsson, Anna Lena, et al.
Publicado: (2020)

Discontinuity of Cardiac Follow‐Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and Meta‐Analysis
por: Moons, Philip, et al.
Publicado: (2021)

Process evaluation of complex cardiovascular interventions: How to interpret the results of my trial?
por: Saarijärvi, Markus, et al.
Publicado: (2020)

Development and psychometric evaluation of TEXP-Q: a questionnaire measuring transition and transfer experiences in emerging adults with type 1 diabetes
por: Vallmark, Mikaela, et al.
Publicado: (2023)

Empowering the Future: Transitioning to Adulthood With Congenital Heart Disease
por: Moons, Philip
Publicado: (2023)

Qualitative study of facilitators and barriers for continued follow-up care as perceived and experienced by young people with congenital heart disease in Sweden
por: Skogby, Sandra, et al.
Publicado: (2021)

When face-to-face interviews are not possible: tips and tricks for video, telephone, online chat, and email interviews in qualitative research
por: Saarijärvi, Markus, et al.
Publicado: (2021)

Health care providers’ attitudes towards transfer and transition in young persons with long term illness- a web-based survey
por: Sparud-Lundin, Carina, et al.
Publicado: (2017)

Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping review
por: Acuña Mora, Mariela, et al.
Publicado: (2016)

Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents
por: Burström, Åsa, et al.
Publicado: (2019)

Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association
por: John, Anitha S., et al.
Publicado: (2022)

Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?
por: Burström, Åsa, et al.
Publicado: (2022)

Development of quality indicators of transfer and transition in adolescents and young adults with congenital heart disease
por: Thomet, Corina, et al.
Publicado: (2023)

Ethnographic process evaluation of a quality improvement project to improve transitions of care for older people
por: Sutton, Elizabeth, et al.
Publicado: (2016)

Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH)
por: Moons, Philip, et al.
Publicado: (2021)

Developing the “Healthcare CEO App” for patients with type 1 diabetes transitioning from adolescence to young adulthood: A mixed‐methods study
por: Chiang, Yueh‐Tao, et al.
Publicado: (2022)

Predictive analytics for cardio-thoracic surgery duration as a stepstone towards data-driven capacity management
por: Nikolova-Simons, Mariana, et al.
Publicado: (2023)

The quick pivot: Capturing real world modifications for the re-implementation of an early psychosis program transitioning to virtual delivery
por: Tempelaar, Wanda, et al.
Publicado: (2023)

Partners at Care Transitions: exploring healthcare professionals’ perspectives of excellence at care transitions for older people
por: Baxter, Ruth, et al.
Publicado: (2018)

Juvenile idiopathic arthritis: the transition to adulthood
por: Fernandes, Susana, et al.
Publicado: (2014)

Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components
por: Skogby, Sandra, et al.
Publicado: (2021)

Parental uncertainty about transferring their adolescent with congenital heart disease to adult care
por: Burström, Åsa, et al.
Publicado: (2018)

Transitional care of adolescents with Multiple Osteochondromas: a convergent mixed-method study ‘Patients’, parents’ and healthcare providers’ perspectives on the transfer process’
por: Amajjar, Ihsane, et al.
Publicado: (2021)

Transition from child and adolescent mental health services to adult mental health services
por: Saour, Tania
Publicado: (2021)

Transitioning from Medicaid to private health insurance: informing public and private sector outreach
por: White, Amy Samantha
Publicado: (2023)

Partners at Care Transitions (PACT)—exploring older peoples’ experiences of transitioning from hospital to home in the UK: protocol for an observation and interview study of older people and their families to understand patient experience and involvement in care at transitions
por: Hardicre, Natasha Kate, et al.
Publicado: (2017)

Trajectories of Alcohol Use During the Transition to Adulthood
por: Maggs, Jennifer L., et al.
Publicado: (2004)

The Transition to Adulthood for Youth Living with Rare Diseases
por: Sandquist, Melanie, et al.
Publicado: (2022)

Facilitating facilitators to facilitate—Some general comments on a strategy for knowledge implementation in health services
por: Eldh, Ann Catrine, et al.
Publicado: (2023)

Rationale, design and baseline data of a mixed methods study examining the clinical impact of a brief transition programme for young people with juvenile idiopathic arthritis: the DON'T RETARD project
por: Hilderson, Deborah, et al.
Publicado: (2013)

‘Menopause affects us all . . .’: menopause transition experiences of female ambulance staff from a UK ambulance service
por: Prothero, Larissa Stella, et al.
Publicado: (2021)

Transition to adulthood for young men with Duchenne Muscular Dystrophy
por: Abbott, David, et al.
Publicado: (2009)

Racial and Ethnic Differences in Neighborhood Attainments in the Transition to Adulthood
por: Swisher, Raymond R., et al.
Publicado: (2013)

Transition to adulthood with a bladder augmentation: histopathologic concerns
por: Mammadov, Emil, et al.
Publicado: (2017)

Transition to Adulthood in Spina Bifida: Changing Roles and Expectations
por: Mukherjee, Shubhra
Publicado: (2007)

Adulthood transitions in health and welfare; a literature review
por: Munck, Berit, et al.
Publicado: (2018)

Cannot write session to /tmp/vufind_sessions/sess_gcqjk4grmhlavdb4201rgpu4i3