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“I go into crisis when …”: ethics of care and moral dilemmas in palliative care

BACKGROUND: Recognising and knowing how to manage ethical issues and moral dilemmas can be considered an ethical skill. In this study, ethics of care is used as a theoretical framework and as a regulatory criterion in the relationship among healthcare professionals, patients with palliative care nee...

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Autores principales: De Panfilis, Ludovica, Di Leo, Silvia, Peruselli, Carlo, Ghirotto, Luca, Tanzi, Silvia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6689155/
https://www.ncbi.nlm.nih.gov/pubmed/31399094
http://dx.doi.org/10.1186/s12904-019-0453-2
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author De Panfilis, Ludovica
Di Leo, Silvia
Peruselli, Carlo
Ghirotto, Luca
Tanzi, Silvia
author_facet De Panfilis, Ludovica
Di Leo, Silvia
Peruselli, Carlo
Ghirotto, Luca
Tanzi, Silvia
author_sort De Panfilis, Ludovica
collection PubMed
description BACKGROUND: Recognising and knowing how to manage ethical issues and moral dilemmas can be considered an ethical skill. In this study, ethics of care is used as a theoretical framework and as a regulatory criterion in the relationship among healthcare professionals, patients with palliative care needs and family members. This study is a part of a larger project aimed at developing and implementing a training programme on “ethical communication” addressed to professionals caring for patients with palliative care needs. The aim of this study was comprehending whether and how the ethics of care informs the way healthcare professionals make sense of and handle ethical issues in palliative care. METHODS: Qualitative study employing a theoretically driven thematic analysis performed on semi-structured interviews. The research was conducted in a clinical cancer centre in northern Italy. Eligible participants were physicians and nurses from eleven hospital wards who assisted patients with chronic advanced disease daily and had previously attended a 4-h training on palliative care held by the hospital Palliative Care Unit. RESULTS: The researchers identified five themes: morality is providing global care; morality is knowing how to have a relationship with patients; morality is recognizing moral principles; moral dimension and communication; and moral dilemmas are individual conflicts. CONCLUSIONS: Ethics of care seems to emerge as a theoretical framework that includes the belief systems of healthcare professionals, especially those assisting patients with palliative care needs; moreover, it allows the values of both the patients and professionals to come to light through the relationship of care. Ethics of care is also appropriate as a framework for ethical training.
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spelling pubmed-66891552019-08-15 “I go into crisis when …”: ethics of care and moral dilemmas in palliative care De Panfilis, Ludovica Di Leo, Silvia Peruselli, Carlo Ghirotto, Luca Tanzi, Silvia BMC Palliat Care Research Article BACKGROUND: Recognising and knowing how to manage ethical issues and moral dilemmas can be considered an ethical skill. In this study, ethics of care is used as a theoretical framework and as a regulatory criterion in the relationship among healthcare professionals, patients with palliative care needs and family members. This study is a part of a larger project aimed at developing and implementing a training programme on “ethical communication” addressed to professionals caring for patients with palliative care needs. The aim of this study was comprehending whether and how the ethics of care informs the way healthcare professionals make sense of and handle ethical issues in palliative care. METHODS: Qualitative study employing a theoretically driven thematic analysis performed on semi-structured interviews. The research was conducted in a clinical cancer centre in northern Italy. Eligible participants were physicians and nurses from eleven hospital wards who assisted patients with chronic advanced disease daily and had previously attended a 4-h training on palliative care held by the hospital Palliative Care Unit. RESULTS: The researchers identified five themes: morality is providing global care; morality is knowing how to have a relationship with patients; morality is recognizing moral principles; moral dimension and communication; and moral dilemmas are individual conflicts. CONCLUSIONS: Ethics of care seems to emerge as a theoretical framework that includes the belief systems of healthcare professionals, especially those assisting patients with palliative care needs; moreover, it allows the values of both the patients and professionals to come to light through the relationship of care. Ethics of care is also appropriate as a framework for ethical training. BioMed Central 2019-08-09 /pmc/articles/PMC6689155/ /pubmed/31399094 http://dx.doi.org/10.1186/s12904-019-0453-2 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
De Panfilis, Ludovica
Di Leo, Silvia
Peruselli, Carlo
Ghirotto, Luca
Tanzi, Silvia
“I go into crisis when …”: ethics of care and moral dilemmas in palliative care
title “I go into crisis when …”: ethics of care and moral dilemmas in palliative care
title_full “I go into crisis when …”: ethics of care and moral dilemmas in palliative care
title_fullStr “I go into crisis when …”: ethics of care and moral dilemmas in palliative care
title_full_unstemmed “I go into crisis when …”: ethics of care and moral dilemmas in palliative care
title_short “I go into crisis when …”: ethics of care and moral dilemmas in palliative care
title_sort “i go into crisis when …”: ethics of care and moral dilemmas in palliative care
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6689155/
https://www.ncbi.nlm.nih.gov/pubmed/31399094
http://dx.doi.org/10.1186/s12904-019-0453-2
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