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Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research

Internet and mobile based research are powerful tools in the creation of large, cohort studies (eCohort). However, recent analysis indicates that an underrepresentation of minority and low income groups in these studies might exceed that found in traditional research [1–5]. In this report, we presen...

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Autores principales: Passmore, Susan Racine, Casper, Erica, Olgin, Jeffery E., Maguire, Carol, Marcus, Gregory M., Pletcher, Mark J., Thomas, Stephen B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6706628/
https://www.ncbi.nlm.nih.gov/pubmed/31463416
http://dx.doi.org/10.1016/j.conctc.2019.100428
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author Passmore, Susan Racine
Casper, Erica
Olgin, Jeffery E.
Maguire, Carol
Marcus, Gregory M.
Pletcher, Mark J.
Thomas, Stephen B.
author_facet Passmore, Susan Racine
Casper, Erica
Olgin, Jeffery E.
Maguire, Carol
Marcus, Gregory M.
Pletcher, Mark J.
Thomas, Stephen B.
author_sort Passmore, Susan Racine
collection PubMed
description Internet and mobile based research are powerful tools in the creation of large, cohort studies (eCohort). However, recent analysis indicates that an underrepresentation of minority and low income groups in these studies might exceed that found in traditional research [1–5]. In this report, we present findings from an experiment in research engagement using the Eureka Research Platform developed to enroll diverse populations in support of biomedical clinical research. This experiment involved the recruitment of African American and Latino participants in a smartphone based survey at a temporary, charitable, dental event sponsored, in part, by the research team, in order to explore the impact of setting and approach on recruitment outcomes. 211 participants enrolled including a significant representation of African Americans (51%) and Latinos (31%) and those with education levels at high school or less (37%). Interviews conducted after the study confirmed that our recruitment efforts within the context of a service event affected the decision to participate. While further research is necessary, this experiment holds promise for the engagement of underrepresented groups in research.
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spelling pubmed-67066282019-08-28 Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research Passmore, Susan Racine Casper, Erica Olgin, Jeffery E. Maguire, Carol Marcus, Gregory M. Pletcher, Mark J. Thomas, Stephen B. Contemp Clin Trials Commun Article Internet and mobile based research are powerful tools in the creation of large, cohort studies (eCohort). However, recent analysis indicates that an underrepresentation of minority and low income groups in these studies might exceed that found in traditional research [1–5]. In this report, we present findings from an experiment in research engagement using the Eureka Research Platform developed to enroll diverse populations in support of biomedical clinical research. This experiment involved the recruitment of African American and Latino participants in a smartphone based survey at a temporary, charitable, dental event sponsored, in part, by the research team, in order to explore the impact of setting and approach on recruitment outcomes. 211 participants enrolled including a significant representation of African Americans (51%) and Latinos (31%) and those with education levels at high school or less (37%). Interviews conducted after the study confirmed that our recruitment efforts within the context of a service event affected the decision to participate. While further research is necessary, this experiment holds promise for the engagement of underrepresented groups in research. Elsevier 2019-08-10 /pmc/articles/PMC6706628/ /pubmed/31463416 http://dx.doi.org/10.1016/j.conctc.2019.100428 Text en © 2019 The Author(s) http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Article
Passmore, Susan Racine
Casper, Erica
Olgin, Jeffery E.
Maguire, Carol
Marcus, Gregory M.
Pletcher, Mark J.
Thomas, Stephen B.
Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research
title Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research
title_full Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research
title_fullStr Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research
title_full_unstemmed Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research
title_short Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research
title_sort setting and motivation in the decision to participate: an approach to the engagement of diverse samples in mobile research
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6706628/
https://www.ncbi.nlm.nih.gov/pubmed/31463416
http://dx.doi.org/10.1016/j.conctc.2019.100428
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