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Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment
BACKGROUND AND PURPOSE: The present study focused on assessing parental knowledge, attitudes, and perceptions about epilepsy as well as addressing the socio-cultural barriers to its treatment. METHODS: Data were collected from out-patient consultations in the neurology department of a tertiary refer...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Korean Epilepsy Society
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6706645/ https://www.ncbi.nlm.nih.gov/pubmed/31482058 http://dx.doi.org/10.14581/jer.19007 |
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author | Rani, Akanksha Thomas, Priya Treesa |
author_facet | Rani, Akanksha Thomas, Priya Treesa |
author_sort | Rani, Akanksha |
collection | PubMed |
description | BACKGROUND AND PURPOSE: The present study focused on assessing parental knowledge, attitudes, and perceptions about epilepsy as well as addressing the socio-cultural barriers to its treatment. METHODS: Data were collected from out-patient consultations in the neurology department of a tertiary referral center in South India. Parents of sixty children suffering from epilepsy in the age-group of 4–15 years were interviewed to explore their knowledge, attitudes, and perceptions about epilepsy. They were recruited in 2015 over a consecutive period of six months. The tools administered were: socio-demographic schedule; clinical profile; a knowledge, attitude, and perception questionnaire prepared by the researcher; and a few case studies with psychosocial interventions. RESULTS: The mean age of the parents who brought their children to the hospital was 37.2 years, with 71.7% being male, of which, 36% were educated up to secondary/intermediate level and were of lower socio-economic status. The mean age of the children with epilepsy was 8.4 years with 66.7% of them being male. Among them, 50% had the most commonly occurring generalized seizures and 26.7% had the co-morbid condition of cerebral palsy. Around 37.7% parents attributed the seizures to evil spirits or supernatural powers, 52.5% to mental illness, and 72.1% were influenced by their families to initially seek religio-spiritual or traditional treatment in desperation for a cure of the illness. In total, 91.8% of the parents visited holy places, made “mannats”, or prayed in worship for hours for their child’s recovery. CONCLUSIONS: Creating awareness about epilepsy is important to address the socio-cultural barriers to its treatment and improve help-seeking behavior. |
format | Online Article Text |
id | pubmed-6706645 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Korean Epilepsy Society |
record_format | MEDLINE/PubMed |
spelling | pubmed-67066452019-09-03 Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment Rani, Akanksha Thomas, Priya Treesa J Epilepsy Res Original Article BACKGROUND AND PURPOSE: The present study focused on assessing parental knowledge, attitudes, and perceptions about epilepsy as well as addressing the socio-cultural barriers to its treatment. METHODS: Data were collected from out-patient consultations in the neurology department of a tertiary referral center in South India. Parents of sixty children suffering from epilepsy in the age-group of 4–15 years were interviewed to explore their knowledge, attitudes, and perceptions about epilepsy. They were recruited in 2015 over a consecutive period of six months. The tools administered were: socio-demographic schedule; clinical profile; a knowledge, attitude, and perception questionnaire prepared by the researcher; and a few case studies with psychosocial interventions. RESULTS: The mean age of the parents who brought their children to the hospital was 37.2 years, with 71.7% being male, of which, 36% were educated up to secondary/intermediate level and were of lower socio-economic status. The mean age of the children with epilepsy was 8.4 years with 66.7% of them being male. Among them, 50% had the most commonly occurring generalized seizures and 26.7% had the co-morbid condition of cerebral palsy. Around 37.7% parents attributed the seizures to evil spirits or supernatural powers, 52.5% to mental illness, and 72.1% were influenced by their families to initially seek religio-spiritual or traditional treatment in desperation for a cure of the illness. In total, 91.8% of the parents visited holy places, made “mannats”, or prayed in worship for hours for their child’s recovery. CONCLUSIONS: Creating awareness about epilepsy is important to address the socio-cultural barriers to its treatment and improve help-seeking behavior. Korean Epilepsy Society 2019-06-30 /pmc/articles/PMC6706645/ /pubmed/31482058 http://dx.doi.org/10.14581/jer.19007 Text en Copyright © 2019 Korean Epilepsy Society This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Article Rani, Akanksha Thomas, Priya Treesa Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment |
title | Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment |
title_full | Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment |
title_fullStr | Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment |
title_full_unstemmed | Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment |
title_short | Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment |
title_sort | parental knoweldge, attitude, and perception about epilepsy and sociocultural barriers to treatment |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6706645/ https://www.ncbi.nlm.nih.gov/pubmed/31482058 http://dx.doi.org/10.14581/jer.19007 |
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