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Communication Needs for Individuals With Rare Diseases Within and Around the Healthcare System of Northern Ireland
Objective: By definition a rare disease affects fewer than 1 in 2,000 people but collectively 1 in 17 people are affected at some time in their lives. Rare disease patients often describe feeling isolated and unsupported. The needs of individuals living with rare disease(s) are not well met globally...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Frontiers Media S.A.
2019
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6712370/ https://www.ncbi.nlm.nih.gov/pubmed/31497589 http://dx.doi.org/10.3389/fpubh.2019.00236 |