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Living with advanced cancer: Rich Pictures as a means for health care providers to explore the experiences of advanced cancer patients

BACKGROUND: To provide holistic care to patients with advanced cancer, health care professionals need to gain insight in patients’ experiences across the different domains of health. However, describing such complex experiences verbally may be difficult for patients. The use of a visual tool, such a...

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Autores principales: Bood, Zarah M., Scherer‐Rath, Michael, Sprangers, Mirjam A. G., Timmermans, Liesbeth, van Wolde, Ellen, Cristancho, Sayra M., Heyning, Fenna, Russel, Silvia, van Laarhoven, Hanneke W. M., Helmich, Esther
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6718737/
https://www.ncbi.nlm.nih.gov/pubmed/31278862
http://dx.doi.org/10.1002/cam4.2342
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author Bood, Zarah M.
Scherer‐Rath, Michael
Sprangers, Mirjam A. G.
Timmermans, Liesbeth
van Wolde, Ellen
Cristancho, Sayra M.
Heyning, Fenna
Russel, Silvia
van Laarhoven, Hanneke W. M.
Helmich, Esther
author_facet Bood, Zarah M.
Scherer‐Rath, Michael
Sprangers, Mirjam A. G.
Timmermans, Liesbeth
van Wolde, Ellen
Cristancho, Sayra M.
Heyning, Fenna
Russel, Silvia
van Laarhoven, Hanneke W. M.
Helmich, Esther
author_sort Bood, Zarah M.
collection PubMed
description BACKGROUND: To provide holistic care to patients with advanced cancer, health care professionals need to gain insight in patients’ experiences across the different domains of health. However, describing such complex experiences verbally may be difficult for patients. The use of a visual tool, such as Rich Pictures (RPs) could be helpful. We explore the use of RPs to gain insight in the experiences of patients with advanced cancer. METHODS: Eighteen patients with advanced cancer were asked to draw a RP expressing how they experienced living with cancer, followed by a semi‐structured interview. Qualitative content analysis, including the examination of all elements in the drawings and their interrelationships, was used to analyze the RPs, which was further informed by the interviews. RESULTS: The RPs clearly showed what was most important to an individual patient and made relations between elements visible at a glance. Themes identified included: medical aspects, the experience of loss, feelings related to loss, support from others and meaningful activities, and integration of cancer in one's life. The added value of RPs lies in the ability to represent these themes in one single snapshot. CONCLUSIONS: RPs allow for a complementary view on the experiences of advanced cancer patients, as they show and relate different aspects of patients’ lives. A RP can provide health care professionals a visual summary of the experiences of a patient. For patients, telling their story to health care professionals might be facilitated when using RPs.
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spelling pubmed-67187372019-09-06 Living with advanced cancer: Rich Pictures as a means for health care providers to explore the experiences of advanced cancer patients Bood, Zarah M. Scherer‐Rath, Michael Sprangers, Mirjam A. G. Timmermans, Liesbeth van Wolde, Ellen Cristancho, Sayra M. Heyning, Fenna Russel, Silvia van Laarhoven, Hanneke W. M. Helmich, Esther Cancer Med Clinical Cancer Research BACKGROUND: To provide holistic care to patients with advanced cancer, health care professionals need to gain insight in patients’ experiences across the different domains of health. However, describing such complex experiences verbally may be difficult for patients. The use of a visual tool, such as Rich Pictures (RPs) could be helpful. We explore the use of RPs to gain insight in the experiences of patients with advanced cancer. METHODS: Eighteen patients with advanced cancer were asked to draw a RP expressing how they experienced living with cancer, followed by a semi‐structured interview. Qualitative content analysis, including the examination of all elements in the drawings and their interrelationships, was used to analyze the RPs, which was further informed by the interviews. RESULTS: The RPs clearly showed what was most important to an individual patient and made relations between elements visible at a glance. Themes identified included: medical aspects, the experience of loss, feelings related to loss, support from others and meaningful activities, and integration of cancer in one's life. The added value of RPs lies in the ability to represent these themes in one single snapshot. CONCLUSIONS: RPs allow for a complementary view on the experiences of advanced cancer patients, as they show and relate different aspects of patients’ lives. A RP can provide health care professionals a visual summary of the experiences of a patient. For patients, telling their story to health care professionals might be facilitated when using RPs. John Wiley and Sons Inc. 2019-07-06 /pmc/articles/PMC6718737/ /pubmed/31278862 http://dx.doi.org/10.1002/cam4.2342 Text en © 2019 The Authors. Cancer Medicine published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Clinical Cancer Research
Bood, Zarah M.
Scherer‐Rath, Michael
Sprangers, Mirjam A. G.
Timmermans, Liesbeth
van Wolde, Ellen
Cristancho, Sayra M.
Heyning, Fenna
Russel, Silvia
van Laarhoven, Hanneke W. M.
Helmich, Esther
Living with advanced cancer: Rich Pictures as a means for health care providers to explore the experiences of advanced cancer patients
title Living with advanced cancer: Rich Pictures as a means for health care providers to explore the experiences of advanced cancer patients
title_full Living with advanced cancer: Rich Pictures as a means for health care providers to explore the experiences of advanced cancer patients
title_fullStr Living with advanced cancer: Rich Pictures as a means for health care providers to explore the experiences of advanced cancer patients
title_full_unstemmed Living with advanced cancer: Rich Pictures as a means for health care providers to explore the experiences of advanced cancer patients
title_short Living with advanced cancer: Rich Pictures as a means for health care providers to explore the experiences of advanced cancer patients
title_sort living with advanced cancer: rich pictures as a means for health care providers to explore the experiences of advanced cancer patients
topic Clinical Cancer Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6718737/
https://www.ncbi.nlm.nih.gov/pubmed/31278862
http://dx.doi.org/10.1002/cam4.2342
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