Cargando…

An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States

Detalles Bibliográficos
Autores principales: Conner, Therese, Cook, Francesca, Fernandez, Vivian, Rangel-Miller, Vanessa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6722252/
https://www.ncbi.nlm.nih.gov/pubmed/31497505
http://dx.doi.org/10.1016/j.ymgmr.2019.100499
_version_ 1783448496223813632
author Conner, Therese
Cook, Francesca
Fernandez, Vivian
Rangel-Miller, Vanessa
author_facet Conner, Therese
Cook, Francesca
Fernandez, Vivian
Rangel-Miller, Vanessa
author_sort Conner, Therese
collection PubMed
description
format Online
Article
Text
id pubmed-6722252
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher Elsevier
record_format MEDLINE/PubMed
spelling pubmed-67222522019-09-06 An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States Conner, Therese Cook, Francesca Fernandez, Vivian Rangel-Miller, Vanessa Mol Genet Metab Rep Research Paper Elsevier 2019-08-31 /pmc/articles/PMC6722252/ /pubmed/31497505 http://dx.doi.org/10.1016/j.ymgmr.2019.100499 Text en © 2019 The Authors http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Research Paper
Conner, Therese
Cook, Francesca
Fernandez, Vivian
Rangel-Miller, Vanessa
An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States
title An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States
title_full An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States
title_fullStr An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States
title_full_unstemmed An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States
title_short An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States
title_sort online survey of burden of illness in families with mucopolysaccharidosis type ii children in the united states
topic Research Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6722252/
https://www.ncbi.nlm.nih.gov/pubmed/31497505
http://dx.doi.org/10.1016/j.ymgmr.2019.100499
work_keys_str_mv AT connertherese anonlinesurveyofburdenofillnessinfamilieswithmucopolysaccharidosistypeiichildrenintheunitedstates
AT cookfrancesca anonlinesurveyofburdenofillnessinfamilieswithmucopolysaccharidosistypeiichildrenintheunitedstates
AT fernandezvivian anonlinesurveyofburdenofillnessinfamilieswithmucopolysaccharidosistypeiichildrenintheunitedstates
AT rangelmillervanessa anonlinesurveyofburdenofillnessinfamilieswithmucopolysaccharidosistypeiichildrenintheunitedstates
AT connertherese onlinesurveyofburdenofillnessinfamilieswithmucopolysaccharidosistypeiichildrenintheunitedstates
AT cookfrancesca onlinesurveyofburdenofillnessinfamilieswithmucopolysaccharidosistypeiichildrenintheunitedstates
AT fernandezvivian onlinesurveyofburdenofillnessinfamilieswithmucopolysaccharidosistypeiichildrenintheunitedstates
AT rangelmillervanessa onlinesurveyofburdenofillnessinfamilieswithmucopolysaccharidosistypeiichildrenintheunitedstates