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Primary mitochondrial disease in the US: Data from patients and physicians' perspective on health care delivery
This article presents data that examine the patient's perception of health care delivery for mitochondrial disease in the US. It also presents the opinions of mitochondrial disease expert physicians about creating a specialised network of clinics to oversee the care of patients with this diseas...
Autores principales: | Karaa, Amel, Goldstein, Amy, Balcells, Cristy, Mann, Kira, Stanley, Laura, Yeske, Philip E., Parikh, Sumit |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6727191/ https://www.ncbi.nlm.nih.gov/pubmed/31516925 http://dx.doi.org/10.1016/j.dib.2019.104343 |
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