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‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming

‘Stereotyped or repetitive motor movements’ are characterised as core features in the diagnosis of autism, yet many autistic adults (and the neurodiversity movement) have reclaimed them as ‘stimming’. Supported by a growing body of scientific research, autistic adults argue that these behaviours may...

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Autores principales: Kapp, Steven K, Steward, Robyn, Crane, Laura, Elliott, Daisy, Elphick, Chris, Pellicano, Elizabeth, Russell, Ginny
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6728747/
https://www.ncbi.nlm.nih.gov/pubmed/30818970
http://dx.doi.org/10.1177/1362361319829628
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author Kapp, Steven K
Steward, Robyn
Crane, Laura
Elliott, Daisy
Elphick, Chris
Pellicano, Elizabeth
Russell, Ginny
author_facet Kapp, Steven K
Steward, Robyn
Crane, Laura
Elliott, Daisy
Elphick, Chris
Pellicano, Elizabeth
Russell, Ginny
author_sort Kapp, Steven K
collection PubMed
description ‘Stereotyped or repetitive motor movements’ are characterised as core features in the diagnosis of autism, yet many autistic adults (and the neurodiversity movement) have reclaimed them as ‘stimming’. Supported by a growing body of scientific research, autistic adults argue that these behaviours may serve as useful coping mechanisms, yet little research has examined stimming from the perspective of autistic adults. Through interviews and focus groups, we asked 32 autistic adults to share their perceptions and experiences of stimming, including the reasons they stim, any value doing so may hold for them and their perceptions of others’ reactions to stimming. Using thematic analysis, we identified two themes: stimming as (1) a self-regulatory mechanism and (2) lacking in social acceptance, but can become accepted through understanding. Autistic adults highlighted the importance of stimming as an adaptive mechanism that helps them to soothe or communicate intense emotions or thoughts and thus objected to treatment that aims to eliminate the behaviour.
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spelling pubmed-67287472019-10-03 ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming Kapp, Steven K Steward, Robyn Crane, Laura Elliott, Daisy Elphick, Chris Pellicano, Elizabeth Russell, Ginny Autism Original Articles ‘Stereotyped or repetitive motor movements’ are characterised as core features in the diagnosis of autism, yet many autistic adults (and the neurodiversity movement) have reclaimed them as ‘stimming’. Supported by a growing body of scientific research, autistic adults argue that these behaviours may serve as useful coping mechanisms, yet little research has examined stimming from the perspective of autistic adults. Through interviews and focus groups, we asked 32 autistic adults to share their perceptions and experiences of stimming, including the reasons they stim, any value doing so may hold for them and their perceptions of others’ reactions to stimming. Using thematic analysis, we identified two themes: stimming as (1) a self-regulatory mechanism and (2) lacking in social acceptance, but can become accepted through understanding. Autistic adults highlighted the importance of stimming as an adaptive mechanism that helps them to soothe or communicate intense emotions or thoughts and thus objected to treatment that aims to eliminate the behaviour. SAGE Publications 2019-02-28 2019-10 /pmc/articles/PMC6728747/ /pubmed/30818970 http://dx.doi.org/10.1177/1362361319829628 Text en © The Author(s) 2019 http://creativecommons.org/licenses/by/4.0/ This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://www.creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Articles
Kapp, Steven K
Steward, Robyn
Crane, Laura
Elliott, Daisy
Elphick, Chris
Pellicano, Elizabeth
Russell, Ginny
‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
title ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
title_full ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
title_fullStr ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
title_full_unstemmed ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
title_short ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
title_sort ‘people should be allowed to do what they like’: autistic adults’ views and experiences of stimming
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6728747/
https://www.ncbi.nlm.nih.gov/pubmed/30818970
http://dx.doi.org/10.1177/1362361319829628
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