Research participants’ experiences with return of genetic research results and preferences for web‐based alternatives

BACKGROUND: While there is increasing interest in sharing genetic research results with participants, how best to communicate the risks, benefits and limitations of research results remains unclear. METHODS: Participants who received genetic research results answered open and closed‐ended questions...

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Detalles Bibliográficos
Autores principales: Gaieski, Jill B., Patrick‐Miller, Linda, Egleston, Brian L., Maxwell, Kara N., Walser, Sarah, DiGiovanni, Laura, Brower, Jamie, Fetzer, Dominique, Ganzak, Amanda, McKenna, Danielle, Long, Jessica M., Powers, Jacquelyn, Stopfer, Jill E., Nathanson, Katherine L., Domchek, Susan M., Bradbury, Angela R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6732272/
https://www.ncbi.nlm.nih.gov/pubmed/31376244
http://dx.doi.org/10.1002/mgg3.898

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