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Co‐producing research with youth: The NeurOx young people's advisory group model

CONTEXT: The 1989 UN Convention on the Rights of the Child states that children have the right to be heard in all matters affecting them. The Convention inspired a surge in research that investigates young people's perspectives on health and wellness‐related concerns and that involves children...

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Autores principales: Pavarini, Gabriela, Lorimer, Jessica, Manzini, Arianna, Goundrey‐Smith, Ed, Singh, Ilina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6737761/
https://www.ncbi.nlm.nih.gov/pubmed/31095837
http://dx.doi.org/10.1111/hex.12911
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author Pavarini, Gabriela
Lorimer, Jessica
Manzini, Arianna
Goundrey‐Smith, Ed
Singh, Ilina
author_facet Pavarini, Gabriela
Lorimer, Jessica
Manzini, Arianna
Goundrey‐Smith, Ed
Singh, Ilina
author_sort Pavarini, Gabriela
collection PubMed
description CONTEXT: The 1989 UN Convention on the Rights of the Child states that children have the right to be heard in all matters affecting them. The Convention inspired a surge in research that investigates young people's perspectives on health and wellness‐related concerns and that involves children as ‘co‐researchers'. Young people's advisory groups (YPAGs) are a widely used method to enable young people's involvement in all research stages, but there is a lack of academic literature to guide researchers on how to set up, run and evaluate the impact of such groups. OBJECTIVE: In this paper, we provide a step‐by‐step model, grounded in our own experience of setting up and coordinating the Oxford Neuroscience, Ethics and Society Young People's Advisory Group (NeurOx YPAG). This group supports studies at the intersection of ethics, mental health and novel technologies. Our model covers the following stages: deciding on the fit for co‐production, recruiting participants, developing collective principles of work, running a meeting and evaluating impact. RESULTS: We emphasize that throughout this process, researchers should take a critical stance by reflecting on whether a co‐production model fits their research scope and aims; ensuring (or aspiring to) representativeness within the group; valuing different kinds of expertise; and undertaking on‐going evaluations on the impact of the group on both the young people and the research. CONCLUSION: Adopting a critical and reflective attitude can increase researchers' capacity to engage youth in democratic and inclusive ways, and to produce research outputs that are aligned with the target audience's needs and priorities.
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spelling pubmed-67377612019-09-14 Co‐producing research with youth: The NeurOx young people's advisory group model Pavarini, Gabriela Lorimer, Jessica Manzini, Arianna Goundrey‐Smith, Ed Singh, Ilina Health Expect Original Research Papers CONTEXT: The 1989 UN Convention on the Rights of the Child states that children have the right to be heard in all matters affecting them. The Convention inspired a surge in research that investigates young people's perspectives on health and wellness‐related concerns and that involves children as ‘co‐researchers'. Young people's advisory groups (YPAGs) are a widely used method to enable young people's involvement in all research stages, but there is a lack of academic literature to guide researchers on how to set up, run and evaluate the impact of such groups. OBJECTIVE: In this paper, we provide a step‐by‐step model, grounded in our own experience of setting up and coordinating the Oxford Neuroscience, Ethics and Society Young People's Advisory Group (NeurOx YPAG). This group supports studies at the intersection of ethics, mental health and novel technologies. Our model covers the following stages: deciding on the fit for co‐production, recruiting participants, developing collective principles of work, running a meeting and evaluating impact. RESULTS: We emphasize that throughout this process, researchers should take a critical stance by reflecting on whether a co‐production model fits their research scope and aims; ensuring (or aspiring to) representativeness within the group; valuing different kinds of expertise; and undertaking on‐going evaluations on the impact of the group on both the young people and the research. CONCLUSION: Adopting a critical and reflective attitude can increase researchers' capacity to engage youth in democratic and inclusive ways, and to produce research outputs that are aligned with the target audience's needs and priorities. John Wiley and Sons Inc. 2019-05-16 2019-08 /pmc/articles/PMC6737761/ /pubmed/31095837 http://dx.doi.org/10.1111/hex.12911 Text en © 2019 The Authors Health Expectations published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Research Papers
Pavarini, Gabriela
Lorimer, Jessica
Manzini, Arianna
Goundrey‐Smith, Ed
Singh, Ilina
Co‐producing research with youth: The NeurOx young people's advisory group model
title Co‐producing research with youth: The NeurOx young people's advisory group model
title_full Co‐producing research with youth: The NeurOx young people's advisory group model
title_fullStr Co‐producing research with youth: The NeurOx young people's advisory group model
title_full_unstemmed Co‐producing research with youth: The NeurOx young people's advisory group model
title_short Co‐producing research with youth: The NeurOx young people's advisory group model
title_sort co‐producing research with youth: the neurox young people's advisory group model
topic Original Research Papers
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6737761/
https://www.ncbi.nlm.nih.gov/pubmed/31095837
http://dx.doi.org/10.1111/hex.12911
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