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Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults
BACKGROUND: The contribution of involving patients and public in health research is widely reported, particularly within mental health research. Less is written about such contributions to doctoral research. The research focus of this doctoral research, self‐harm in older adults, was put forward by...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6737763/ https://www.ncbi.nlm.nih.gov/pubmed/31131529 http://dx.doi.org/10.1111/hex.12917 |
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author | Troya, M. Isabela Chew‐Graham, Carolyn A. Babatunde, Opeyemi Bartlam, Bernadette Higginbottom, Adele Dikomitis, Lisa |
author_facet | Troya, M. Isabela Chew‐Graham, Carolyn A. Babatunde, Opeyemi Bartlam, Bernadette Higginbottom, Adele Dikomitis, Lisa |
author_sort | Troya, M. Isabela |
collection | PubMed |
description | BACKGROUND: The contribution of involving patients and public in health research is widely reported, particularly within mental health research. Less is written about such contributions to doctoral research. The research focus of this doctoral research, self‐harm in older adults, was put forward by a Patient Public Involvement Engagement (PPIE) group, who contributed to its development. AIMS: Critically reflect on the process, potential impact and identify challenges and opportunities in involving robust PPIE in a doctoral study. METHODS: Three PPIE members contributed to a systematic review (SR) and a qualitative study through a series of four workshops to meet the aims of the study. PPIE contributed to developing the SR review questions, protocol, data analysis and dissemination of findings. For the qualitative study, they helped develop research questions, protocol, public‐facing documentation, recruitment strategies and data analysis. Involvement followed the GRIPP2‐SF reporting checklist. RESULTS: PPIE enhanced methodological rigour, data analysis, interpretation and dissemination of findings. Challenges included lack of ethical guidance, time‐related pressures and ensuring support for PPIE members. These were successfully managed through ongoing dialogue and regular communication. CONCLUSIONS: PPIE can enhance the quality and depth of doctoral research, as lived experiences shared by PPIE members add to research's components. Exposing early‐career researchers to PPIE can build research cultures sensitive to PPIE's potential contribution and develop the expertise needed to avoid tokenistic involvement. Capturing lay perspectives is essential in mental health research to ensure research findings are accessible and that findings inform clinical practice. However, clear guidance on the ethical dimensions to PPIE is needed. |
format | Online Article Text |
id | pubmed-6737763 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-67377632019-09-14 Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults Troya, M. Isabela Chew‐Graham, Carolyn A. Babatunde, Opeyemi Bartlam, Bernadette Higginbottom, Adele Dikomitis, Lisa Health Expect Original Research Papers BACKGROUND: The contribution of involving patients and public in health research is widely reported, particularly within mental health research. Less is written about such contributions to doctoral research. The research focus of this doctoral research, self‐harm in older adults, was put forward by a Patient Public Involvement Engagement (PPIE) group, who contributed to its development. AIMS: Critically reflect on the process, potential impact and identify challenges and opportunities in involving robust PPIE in a doctoral study. METHODS: Three PPIE members contributed to a systematic review (SR) and a qualitative study through a series of four workshops to meet the aims of the study. PPIE contributed to developing the SR review questions, protocol, data analysis and dissemination of findings. For the qualitative study, they helped develop research questions, protocol, public‐facing documentation, recruitment strategies and data analysis. Involvement followed the GRIPP2‐SF reporting checklist. RESULTS: PPIE enhanced methodological rigour, data analysis, interpretation and dissemination of findings. Challenges included lack of ethical guidance, time‐related pressures and ensuring support for PPIE members. These were successfully managed through ongoing dialogue and regular communication. CONCLUSIONS: PPIE can enhance the quality and depth of doctoral research, as lived experiences shared by PPIE members add to research's components. Exposing early‐career researchers to PPIE can build research cultures sensitive to PPIE's potential contribution and develop the expertise needed to avoid tokenistic involvement. Capturing lay perspectives is essential in mental health research to ensure research findings are accessible and that findings inform clinical practice. However, clear guidance on the ethical dimensions to PPIE is needed. John Wiley and Sons Inc. 2019-05-26 2019-08 /pmc/articles/PMC6737763/ /pubmed/31131529 http://dx.doi.org/10.1111/hex.12917 Text en © 2019 The Authors Health Expectations Published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Research Papers Troya, M. Isabela Chew‐Graham, Carolyn A. Babatunde, Opeyemi Bartlam, Bernadette Higginbottom, Adele Dikomitis, Lisa Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults |
title | Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults |
title_full | Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults |
title_fullStr | Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults |
title_full_unstemmed | Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults |
title_short | Patient and Public Involvement and Engagement in a doctoral research project exploring self‐harm in older adults |
title_sort | patient and public involvement and engagement in a doctoral research project exploring self‐harm in older adults |
topic | Original Research Papers |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6737763/ https://www.ncbi.nlm.nih.gov/pubmed/31131529 http://dx.doi.org/10.1111/hex.12917 |
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