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Researchers' perspectives on public involvement in health research in Singapore: The argument for a community‐based approach

BACKGROUND: Singapore is becoming a world‐class research hub, promoting the advancement of patient care through translational clinical research. Despite growing evidence internationally of the positive impact of public involvement (PPI), in Singapore PPI remains unusual beyond patient participation...

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Detalles Bibliográficos
Autores principales: Luna Puerta, Lidia, Bartlam, Bernadette, Smith, Helen E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6737771/
https://www.ncbi.nlm.nih.gov/pubmed/31322811
http://dx.doi.org/10.1111/hex.12915
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author Luna Puerta, Lidia
Bartlam, Bernadette
Smith, Helen E.
author_facet Luna Puerta, Lidia
Bartlam, Bernadette
Smith, Helen E.
author_sort Luna Puerta, Lidia
collection PubMed
description BACKGROUND: Singapore is becoming a world‐class research hub, promoting the advancement of patient care through translational clinical research. Despite growing evidence internationally of the positive impact of public involvement (PPI), in Singapore PPI remains unusual beyond patient participation as subjects in studies. OBJECTIVE: To explore health researchers' understandings of the principles, role and scope of PPI, and to identify barriers and opportunities for implementation in Singapore. DESIGN: Semi‐structured qualitative interviews between April and July 2018. Data were analysed using thematic framework analysis. RESULTS: Whilst most participants (n = 20) expressed a lack of experience of PPI, the interview process provided an opportunity for reflection through which it emerged as a beneficial strategy. Interviewees highlighted both utilitarian and ethical reasons for implementing PPI, particularly around increasing the relevance and efficiency of research. In addition to those challenges to PPI documented in the existing literature, participants highlighted others specific to the Singaporean context that make PPI at an individual level unlikely to be successful, including the socio‐political environment and prevailing social and professional hierarchies. They also identified asset‐based strategies to overcome these, in particular, a more community‐oriented approach. CONCLUSION: The cultural reluctance of individuals to question perceived authority figures such as researchers may be overcome by adopting an approach to PPI that is closer to family and local community values, and which facilitates patients and the public collectively engaging in research. Further work is needed to explore the views of patients and the public in Singapore, and the implications for other Asian communities.
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spelling pubmed-67377712019-09-14 Researchers' perspectives on public involvement in health research in Singapore: The argument for a community‐based approach Luna Puerta, Lidia Bartlam, Bernadette Smith, Helen E. Health Expect Original Research Papers BACKGROUND: Singapore is becoming a world‐class research hub, promoting the advancement of patient care through translational clinical research. Despite growing evidence internationally of the positive impact of public involvement (PPI), in Singapore PPI remains unusual beyond patient participation as subjects in studies. OBJECTIVE: To explore health researchers' understandings of the principles, role and scope of PPI, and to identify barriers and opportunities for implementation in Singapore. DESIGN: Semi‐structured qualitative interviews between April and July 2018. Data were analysed using thematic framework analysis. RESULTS: Whilst most participants (n = 20) expressed a lack of experience of PPI, the interview process provided an opportunity for reflection through which it emerged as a beneficial strategy. Interviewees highlighted both utilitarian and ethical reasons for implementing PPI, particularly around increasing the relevance and efficiency of research. In addition to those challenges to PPI documented in the existing literature, participants highlighted others specific to the Singaporean context that make PPI at an individual level unlikely to be successful, including the socio‐political environment and prevailing social and professional hierarchies. They also identified asset‐based strategies to overcome these, in particular, a more community‐oriented approach. CONCLUSION: The cultural reluctance of individuals to question perceived authority figures such as researchers may be overcome by adopting an approach to PPI that is closer to family and local community values, and which facilitates patients and the public collectively engaging in research. Further work is needed to explore the views of patients and the public in Singapore, and the implications for other Asian communities. John Wiley and Sons Inc. 2019-07-19 2019-08 /pmc/articles/PMC6737771/ /pubmed/31322811 http://dx.doi.org/10.1111/hex.12915 Text en © 2019 The Authors. Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Research Papers
Luna Puerta, Lidia
Bartlam, Bernadette
Smith, Helen E.
Researchers' perspectives on public involvement in health research in Singapore: The argument for a community‐based approach
title Researchers' perspectives on public involvement in health research in Singapore: The argument for a community‐based approach
title_full Researchers' perspectives on public involvement in health research in Singapore: The argument for a community‐based approach
title_fullStr Researchers' perspectives on public involvement in health research in Singapore: The argument for a community‐based approach
title_full_unstemmed Researchers' perspectives on public involvement in health research in Singapore: The argument for a community‐based approach
title_short Researchers' perspectives on public involvement in health research in Singapore: The argument for a community‐based approach
title_sort researchers' perspectives on public involvement in health research in singapore: the argument for a community‐based approach
topic Original Research Papers
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6737771/
https://www.ncbi.nlm.nih.gov/pubmed/31322811
http://dx.doi.org/10.1111/hex.12915
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