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Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community
BACKGROUND: Co‐production is predicated on equal power‐sharing and responsibility in research partnerships. However, relatively few accounts exist that explore the subjective experience of how co‐researchers achieve such equality, from the perspectives of public contributors and researchers. AIM: Th...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6737832/ https://www.ncbi.nlm.nih.gov/pubmed/31318129 http://dx.doi.org/10.1111/hex.12939 |
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author | Aabe, Nura O. Fox, Fiona Rai, Dheeraj Redwood, Sabi |
author_facet | Aabe, Nura O. Fox, Fiona Rai, Dheeraj Redwood, Sabi |
author_sort | Aabe, Nura O. |
collection | PubMed |
description | BACKGROUND: Co‐production is predicated on equal power‐sharing and responsibility in research partnerships. However, relatively few accounts exist that explore the subjective experience of how co‐researchers achieve such equality, from the perspectives of public contributors and researchers. AIM: This paper aims to provide a unique insight into the process of co‐production, by weaving personal reflections with principles to evaluate the impact arising from co‐produced knowledge. It is based upon participatory research that was initiated by a ‘lay’ person, on behalf of a community organization, seeking support for Somali families who are affected by autism. The paper explores the evolving partnerships that began with community theatre and qualitative research and leading to extensive dissemination and impact, all of which has been jointly owned and negotiated by the co‐researchers and community organizations. DISCUSSION: Initially, this paper reflects on the process, drawing on principles defined for co‐production in health research and combining it with the co‐researcher's personal reflections of their experiences as insiders and outsiders, stepping in and out of each other's worlds. The value of reciprocity, flexibility and continuous reflection is illustrated. The latter part of the paper explores the impact of this co‐produced knowledge using a theoretical framework, to assess the specific impacts and its broader transformative potential. It demonstrates how (1) opportunities for all partners to be equitably involved to the maximum degree possible throughout the research process can affect social change and (2) co‐produced research can become a catalyst that is dynamic and complex, achieving multi‐layered impact. |
format | Online Article Text |
id | pubmed-6737832 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-67378322019-09-14 Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community Aabe, Nura O. Fox, Fiona Rai, Dheeraj Redwood, Sabi Health Expect Original Research Papers BACKGROUND: Co‐production is predicated on equal power‐sharing and responsibility in research partnerships. However, relatively few accounts exist that explore the subjective experience of how co‐researchers achieve such equality, from the perspectives of public contributors and researchers. AIM: This paper aims to provide a unique insight into the process of co‐production, by weaving personal reflections with principles to evaluate the impact arising from co‐produced knowledge. It is based upon participatory research that was initiated by a ‘lay’ person, on behalf of a community organization, seeking support for Somali families who are affected by autism. The paper explores the evolving partnerships that began with community theatre and qualitative research and leading to extensive dissemination and impact, all of which has been jointly owned and negotiated by the co‐researchers and community organizations. DISCUSSION: Initially, this paper reflects on the process, drawing on principles defined for co‐production in health research and combining it with the co‐researcher's personal reflections of their experiences as insiders and outsiders, stepping in and out of each other's worlds. The value of reciprocity, flexibility and continuous reflection is illustrated. The latter part of the paper explores the impact of this co‐produced knowledge using a theoretical framework, to assess the specific impacts and its broader transformative potential. It demonstrates how (1) opportunities for all partners to be equitably involved to the maximum degree possible throughout the research process can affect social change and (2) co‐produced research can become a catalyst that is dynamic and complex, achieving multi‐layered impact. John Wiley and Sons Inc. 2019-07-18 2019-08 /pmc/articles/PMC6737832/ /pubmed/31318129 http://dx.doi.org/10.1111/hex.12939 Text en © 2019 The Authors. Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Research Papers Aabe, Nura O. Fox, Fiona Rai, Dheeraj Redwood, Sabi Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community |
title | Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community |
title_full | Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community |
title_fullStr | Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community |
title_full_unstemmed | Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community |
title_short | Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community |
title_sort | inside, outside and in‐between: the process and impact of co‐producing knowledge about autism in a uk somali community |
topic | Original Research Papers |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6737832/ https://www.ncbi.nlm.nih.gov/pubmed/31318129 http://dx.doi.org/10.1111/hex.12939 |
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