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An observational study on quality of life and preferences to sustain life in locked-in state

OBJECTIVE: This is an observational study on well-being and end-of-life preferences in patients with amyotrophic lateral sclerosis (ALS) in the locked-in state (LIS) in a Polish sample within the EU Joint Programme–Neurodegenerative Disease Research study NEEDSinALS (NEEDSinALS.com). METHODS: In thi...

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Detalles Bibliográficos
Autores principales:	Kuzma-Kozakiewicz, Magdalena, Andersen, Peter M., Ciecwierska, Katarzyna, Vázquez, Cynthia, Helczyk, Olga, Loose, Markus, Uttner, Ingo, Ludolph, Albert C., Lulé, Dorothée
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Lippincott Williams & Wilkins 2019
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6745736/ https://www.ncbi.nlm.nih.gov/pubmed/31391247 http://dx.doi.org/10.1212/WNL.0000000000008064

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