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Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru

BACKGROUND: Despite recommendations for disclosure of HIV status to children living with HIV (CLHIV), fewer than half of CLHIV at the Instituto Nacional de Salud del Niño (INSN) in Lima, Peru, have had disclosure. How and when the disclosure process for CLHIV should take place in Peru has not been s...

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Autores principales: Baker, Amira Noori, Bayer, Angela Marie, Kolevic, Lenka, Najarro, Lizzete, Viani, Rolando Mario, Deville, Jaime Gerardo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6748514/
https://www.ncbi.nlm.nih.gov/pubmed/29347903
http://dx.doi.org/10.1177/2325957417752257
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author Baker, Amira Noori
Bayer, Angela Marie
Kolevic, Lenka
Najarro, Lizzete
Viani, Rolando Mario
Deville, Jaime Gerardo
author_facet Baker, Amira Noori
Bayer, Angela Marie
Kolevic, Lenka
Najarro, Lizzete
Viani, Rolando Mario
Deville, Jaime Gerardo
author_sort Baker, Amira Noori
collection PubMed
description BACKGROUND: Despite recommendations for disclosure of HIV status to children living with HIV (CLHIV), fewer than half of CLHIV at the Instituto Nacional de Salud del Niño (INSN) in Lima, Peru, have had disclosure. How and when the disclosure process for CLHIV should take place in Peru has not been studied. METHODS: We conducted a qualitative study at INSN to explore perceptions and experiences of 6 health care providers (HCPs), 14 disclosed and nondisclosed CLHIV (8-17 years), and their 14 caregivers regarding knowledge of illness, disclosure of HIV status, and appropriate disclosure approaches. RESULTS: Disclosed children wanted to be told their diagnosis earlier. Nondisclosed children expressed frustration taking medications. Caregivers and HCPs discussed motivations to disclose, including educating, honesty, improving medication adherence, and preventing secondary transmission. CONCLUSION: Culturally appropriate guidelines and training for HCPs and caregivers are needed to support disclosure of children’s HIV status and ongoing support for CLHIV.
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spelling pubmed-67485142019-11-04 Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru Baker, Amira Noori Bayer, Angela Marie Kolevic, Lenka Najarro, Lizzete Viani, Rolando Mario Deville, Jaime Gerardo J Int Assoc Provid AIDS Care Article BACKGROUND: Despite recommendations for disclosure of HIV status to children living with HIV (CLHIV), fewer than half of CLHIV at the Instituto Nacional de Salud del Niño (INSN) in Lima, Peru, have had disclosure. How and when the disclosure process for CLHIV should take place in Peru has not been studied. METHODS: We conducted a qualitative study at INSN to explore perceptions and experiences of 6 health care providers (HCPs), 14 disclosed and nondisclosed CLHIV (8-17 years), and their 14 caregivers regarding knowledge of illness, disclosure of HIV status, and appropriate disclosure approaches. RESULTS: Disclosed children wanted to be told their diagnosis earlier. Nondisclosed children expressed frustration taking medications. Caregivers and HCPs discussed motivations to disclose, including educating, honesty, improving medication adherence, and preventing secondary transmission. CONCLUSION: Culturally appropriate guidelines and training for HCPs and caregivers are needed to support disclosure of children’s HIV status and ongoing support for CLHIV. SAGE Publications 2018-01-19 /pmc/articles/PMC6748514/ /pubmed/29347903 http://dx.doi.org/10.1177/2325957417752257 Text en © The Author(s) 2018 http://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Article
Baker, Amira Noori
Bayer, Angela Marie
Kolevic, Lenka
Najarro, Lizzete
Viani, Rolando Mario
Deville, Jaime Gerardo
Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru
title Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru
title_full Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru
title_fullStr Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru
title_full_unstemmed Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru
title_short Child, Caregiver, and Health Care Provider Perspectives and Experiences Regarding Disclosure of HIV Status to Perinatally Infected Children in Lima, Peru
title_sort child, caregiver, and health care provider perspectives and experiences regarding disclosure of hiv status to perinatally infected children in lima, peru
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6748514/
https://www.ncbi.nlm.nih.gov/pubmed/29347903
http://dx.doi.org/10.1177/2325957417752257
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