Cargando…
“It would be so much easier”: health system-led genetic risk notification—feasibility and acceptability of cascade screening in an integrated system
Assess the feasibility and acceptability of health system-led genetic risk notification in a US integrated health system. We conducted semi-structured phone interviews with individuals age 40–64 years who had undergone genetic sequencing, but had not yet received their results, assessing attitudes t...
Autores principales: | Henrikson, Nora B., Blasi, Paula R., Fullerton, Stephanie M., Grafton, Jane, Leppig, Kathleen A., Jarvik, Gail P., Larson, Eric B. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6754469/ https://www.ncbi.nlm.nih.gov/pubmed/30843145 http://dx.doi.org/10.1007/s12687-019-00412-z |
Ejemplares similares
-
Feasibility, acceptability, and limited efficacy of health system-led familial risk notification: protocol for a mixed-methods evaluation
por: Blasi, Paula R., et al.
Publicado: (2022) -
Patient and Family Preferences on Health System-Led Direct Contact for Cascade Screening
por: Henrikson, Nora B., et al.
Publicado: (2021) -
Preferences of biobank participants for receiving actionable genomic test results: results of a re-contacting study
por: Henrikson, Nora B., et al.
Publicado: (2021) -
‘It would be much easier if we were just quiet and disappeared’: Parents silenced in the experience of caring for children with rare diseases
por: Currie, Genevieve, et al.
Publicado: (2019) -
The mask (which we need so much is the one we would have needed)()()
por: Torres, L.M., et al.
Publicado: (2020)