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Functional and self-care capacity of people with multiple sclerosis

OBJECTIVE: describe the self-care and functionality levels of patients with multiple sclerosis and determine whether sociodemographic, clinical and functional variables interfere with self-care and/or functionality. METHOD: correlational, cross-sectional study with a quantitative approach performed...

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Autores principales: Oliveira-Kumakura, Ana Railka de Souza, Bezutti, Larissa Maria, Silva, Juliany Lino Gomes, Gasparino, Renata Cristina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6781382/
https://www.ncbi.nlm.nih.gov/pubmed/31596417
http://dx.doi.org/10.1590/1518-8345.3068.3183
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author Oliveira-Kumakura, Ana Railka de Souza
Bezutti, Larissa Maria
Silva, Juliany Lino Gomes
Gasparino, Renata Cristina
author_facet Oliveira-Kumakura, Ana Railka de Souza
Bezutti, Larissa Maria
Silva, Juliany Lino Gomes
Gasparino, Renata Cristina
author_sort Oliveira-Kumakura, Ana Railka de Souza
collection PubMed
description OBJECTIVE: describe the self-care and functionality levels of patients with multiple sclerosis and determine whether sociodemographic, clinical and functional variables interfere with self-care and/or functionality. METHOD: correlational, cross-sectional study with a quantitative approach performed with individuals in outpatient follow-up. We collected sociodemographic and clinical data and applied the Appraisal of Self-care Agency Scale, the Barthel index, the Lawtton and Brody Scale, and the instrument to investigate the performance in Advanced Activities of Daily Living. We performed descriptive and inferential analysis. RESULTS: most patients were classified as “having self-care” (82.14%); with moderate dependence (51.19%) for the basic activities of daily living, partial dependence for the instrumental activities of daily living (55.95%), and more active for the advanced activities of daily living (85.71%). Patients with longer disease duration had a higher number of disabilities and, in those with better socioeconomic and educational profile, the functionality was better. CONCLUSION: disease duration was strongly correlated with a higher number of disabilities and better socioeconomic and educational profiles showed to be protective factors for functionality. Care planning should consider the needs observed by the multidisciplinary team, stimulating the development of self-care, functionality and sociability.
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spelling pubmed-67813822019-10-16 Functional and self-care capacity of people with multiple sclerosis Oliveira-Kumakura, Ana Railka de Souza Bezutti, Larissa Maria Silva, Juliany Lino Gomes Gasparino, Renata Cristina Rev Lat Am Enfermagem Original Article OBJECTIVE: describe the self-care and functionality levels of patients with multiple sclerosis and determine whether sociodemographic, clinical and functional variables interfere with self-care and/or functionality. METHOD: correlational, cross-sectional study with a quantitative approach performed with individuals in outpatient follow-up. We collected sociodemographic and clinical data and applied the Appraisal of Self-care Agency Scale, the Barthel index, the Lawtton and Brody Scale, and the instrument to investigate the performance in Advanced Activities of Daily Living. We performed descriptive and inferential analysis. RESULTS: most patients were classified as “having self-care” (82.14%); with moderate dependence (51.19%) for the basic activities of daily living, partial dependence for the instrumental activities of daily living (55.95%), and more active for the advanced activities of daily living (85.71%). Patients with longer disease duration had a higher number of disabilities and, in those with better socioeconomic and educational profile, the functionality was better. CONCLUSION: disease duration was strongly correlated with a higher number of disabilities and better socioeconomic and educational profiles showed to be protective factors for functionality. Care planning should consider the needs observed by the multidisciplinary team, stimulating the development of self-care, functionality and sociability. Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2019-10-07 /pmc/articles/PMC6781382/ /pubmed/31596417 http://dx.doi.org/10.1590/1518-8345.3068.3183 Text en Copyright © 2019 Revista Latino-Americana de Enfermagem https://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
Oliveira-Kumakura, Ana Railka de Souza
Bezutti, Larissa Maria
Silva, Juliany Lino Gomes
Gasparino, Renata Cristina
Functional and self-care capacity of people with multiple sclerosis
title Functional and self-care capacity of people with multiple sclerosis
title_full Functional and self-care capacity of people with multiple sclerosis
title_fullStr Functional and self-care capacity of people with multiple sclerosis
title_full_unstemmed Functional and self-care capacity of people with multiple sclerosis
title_short Functional and self-care capacity of people with multiple sclerosis
title_sort functional and self-care capacity of people with multiple sclerosis
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6781382/
https://www.ncbi.nlm.nih.gov/pubmed/31596417
http://dx.doi.org/10.1590/1518-8345.3068.3183
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