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The Experiences of People Living with Peripheral Neuropathy in Kuwait—A Process Map of the Patient Journey

Peripheral neuropathy is a neurological disease characterised by pain, numbness, tingling, swelling or muscle weakness due to nerve damage, caused by multiple factors such as trauma, infections and metabolic diseases such as diabetes. In Kuwait 54% of the diabetic population, has peripheral neuropat...

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Detalles Bibliográficos
Autores principales: Alkandari, Maryam, Ryan, Kath, Hollywood, Amelia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6789644/
https://www.ncbi.nlm.nih.gov/pubmed/31480223
http://dx.doi.org/10.3390/pharmacy7030127
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author Alkandari, Maryam
Ryan, Kath
Hollywood, Amelia
author_facet Alkandari, Maryam
Ryan, Kath
Hollywood, Amelia
author_sort Alkandari, Maryam
collection PubMed
description Peripheral neuropathy is a neurological disease characterised by pain, numbness, tingling, swelling or muscle weakness due to nerve damage, caused by multiple factors such as trauma, infections and metabolic diseases such as diabetes. In Kuwait 54% of the diabetic population, has peripheral neuropathy. In this exploratory, qualitative study conducted in Kuwait, 25 subjects with peripheral neuropathy took part in one-on-one, semi-structured interviews lasting 45–60 min. Interviews were transcribed, translated into English and coded using NVivo 12. Four individual patient journeys were mapped out in detail, then compared and condensed into a single process map. The remaining 21 interviews were then reviewed to ensure the final map represented all patient journeys. Participants reported similar healthcare pathways for their peripheral neuropathy and faced various difficulties including lack of psychological support, administrative issues (long waiting referral periods, loss of medical documents, shortage of specialists and lack of centralized electronic medical records) and inadequate medical care (shortage of new treatments and deficient follow-ups). Mapping the patient journey in Kuwait showed similar pharmacological treatment to UK guidelines, except that some medicines were unavailable. The map also indicated the need for an integrated referral approach, the use of technology for electronic medical recording and report transmission, alongside education on self-management, coping mechanisms and treatment options for people living with peripheral neuropathy.
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spelling pubmed-67896442019-10-16 The Experiences of People Living with Peripheral Neuropathy in Kuwait—A Process Map of the Patient Journey Alkandari, Maryam Ryan, Kath Hollywood, Amelia Pharmacy (Basel) Article Peripheral neuropathy is a neurological disease characterised by pain, numbness, tingling, swelling or muscle weakness due to nerve damage, caused by multiple factors such as trauma, infections and metabolic diseases such as diabetes. In Kuwait 54% of the diabetic population, has peripheral neuropathy. In this exploratory, qualitative study conducted in Kuwait, 25 subjects with peripheral neuropathy took part in one-on-one, semi-structured interviews lasting 45–60 min. Interviews were transcribed, translated into English and coded using NVivo 12. Four individual patient journeys were mapped out in detail, then compared and condensed into a single process map. The remaining 21 interviews were then reviewed to ensure the final map represented all patient journeys. Participants reported similar healthcare pathways for their peripheral neuropathy and faced various difficulties including lack of psychological support, administrative issues (long waiting referral periods, loss of medical documents, shortage of specialists and lack of centralized electronic medical records) and inadequate medical care (shortage of new treatments and deficient follow-ups). Mapping the patient journey in Kuwait showed similar pharmacological treatment to UK guidelines, except that some medicines were unavailable. The map also indicated the need for an integrated referral approach, the use of technology for electronic medical recording and report transmission, alongside education on self-management, coping mechanisms and treatment options for people living with peripheral neuropathy. MDPI 2019-08-30 /pmc/articles/PMC6789644/ /pubmed/31480223 http://dx.doi.org/10.3390/pharmacy7030127 Text en © 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Alkandari, Maryam
Ryan, Kath
Hollywood, Amelia
The Experiences of People Living with Peripheral Neuropathy in Kuwait—A Process Map of the Patient Journey
title The Experiences of People Living with Peripheral Neuropathy in Kuwait—A Process Map of the Patient Journey
title_full The Experiences of People Living with Peripheral Neuropathy in Kuwait—A Process Map of the Patient Journey
title_fullStr The Experiences of People Living with Peripheral Neuropathy in Kuwait—A Process Map of the Patient Journey
title_full_unstemmed The Experiences of People Living with Peripheral Neuropathy in Kuwait—A Process Map of the Patient Journey
title_short The Experiences of People Living with Peripheral Neuropathy in Kuwait—A Process Map of the Patient Journey
title_sort experiences of people living with peripheral neuropathy in kuwait—a process map of the patient journey
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6789644/
https://www.ncbi.nlm.nih.gov/pubmed/31480223
http://dx.doi.org/10.3390/pharmacy7030127
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