What are the information needs of parents caring for a child with Glutaric aciduria type 1?

BACKGROUND: Newborn screening has enabled the early diagnosis of Glutaric aciduria type 1, with the possibility of improving neurological outcomes in affected children. Achieving those outcomes requires parents to effectively manage their child’s condition by adherence to a strict dietary regime and...

Descripción completa

Detalles Bibliográficos
Autores principales: Piercy, Hilary, Yeo, Mildrid, Yap, Sufin, Hart, Anthony R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6790240/
https://www.ncbi.nlm.nih.gov/pubmed/31607269
http://dx.doi.org/10.1186/s12887-019-1742-x

Ejemplares similares

Ejemplares similares