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The initiation, design, and establishment of the Desmoid Tumor Research Foundation Patient Registry and Natural History Study
Desmoid tumors are locally invasive sarcoma, affecting 5–6 individuals out of 1,000,000 per year. The desmoid tumors have high rates of recurrence after resection and can lead to significant deterioration of the quality of life of patients. There is a need for a better understanding of the desmoid t...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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SAGE Publications
2019
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6792280/ https://www.ncbi.nlm.nih.gov/pubmed/31662832 http://dx.doi.org/10.1177/2036361319880978 |