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2484: Establishment of the Tennessee-sickle cell disease network as a mechanism for engaging a rare disease population in patient centered outcomes research

OBJECTIVES/SPECIFIC AIMS: Despite the high prevalence of individuals diagnosed with sickle cell disease (SCD) in Tennessee, comprehensive care and education for patients with SCD is not as widely available as healthcare services for individuals managing other chronic illnesses. We aimed to engage SC...

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Detalles Bibliográficos
Autores principales:	Mayo-Gamble, Tilicia, McBride Murry, Velma, DeBaun, Michael R.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Cambridge University Press 2018
Materias:	Outcomes Research/Health Services Research/Comparative Effectiveness
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6798435/ http://dx.doi.org/10.1017/cts.2017.284

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