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Facilitators of research registry enrollment and potential variation by race and gender

INTRODUCTION: Little is known about what motivates people to enroll in research registries. The purpose of this study is to identify facilitators of registry enrollment among diverse older adults. METHODS: Participants completed an 18-item Research Interest Assessment Tool. We used logistic regressi...

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Autores principales: Glover, Crystal M., Creel-Bulos, Christina, Patel, Lisa M., During, Scarlett Ellis, Graham, Karen L., Montoya, Yadira, Frick, Susan, Phillips, Judy, Shah, Raj C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6798442/
https://www.ncbi.nlm.nih.gov/pubmed/31660225
http://dx.doi.org/10.1017/cts.2018.326
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author Glover, Crystal M.
Creel-Bulos, Christina
Patel, Lisa M.
During, Scarlett Ellis
Graham, Karen L.
Montoya, Yadira
Frick, Susan
Phillips, Judy
Shah, Raj C.
author_facet Glover, Crystal M.
Creel-Bulos, Christina
Patel, Lisa M.
During, Scarlett Ellis
Graham, Karen L.
Montoya, Yadira
Frick, Susan
Phillips, Judy
Shah, Raj C.
author_sort Glover, Crystal M.
collection PubMed
description INTRODUCTION: Little is known about what motivates people to enroll in research registries. The purpose of this study is to identify facilitators of registry enrollment among diverse older adults. METHODS: Participants completed an 18-item Research Interest Assessment Tool. We used logistic regression analyses to examine responses across participants and by race and gender. RESULTS: Participants (N=374) were 58% black, 76% women, with a mean age of 68.2 years. All participants were motivated to maintain their memory while aging. Facilitators of registry enrolled varied by both race and gender. Notably, blacks (estimate=0.71, p<0.0001) and women (estimate=0.32, p=0.03) were more willing to enroll in the registry due to home visits compared with whites and men, respectively. CONCLUSIONS: Researchers must consider participant desire for maintaining memory while aging and home visits when designing culturally tailored registries.
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spelling pubmed-67984422019-10-28 Facilitators of research registry enrollment and potential variation by race and gender Glover, Crystal M. Creel-Bulos, Christina Patel, Lisa M. During, Scarlett Ellis Graham, Karen L. Montoya, Yadira Frick, Susan Phillips, Judy Shah, Raj C. J Clin Transl Sci Implementation, Policy and Community Engagement INTRODUCTION: Little is known about what motivates people to enroll in research registries. The purpose of this study is to identify facilitators of registry enrollment among diverse older adults. METHODS: Participants completed an 18-item Research Interest Assessment Tool. We used logistic regression analyses to examine responses across participants and by race and gender. RESULTS: Participants (N=374) were 58% black, 76% women, with a mean age of 68.2 years. All participants were motivated to maintain their memory while aging. Facilitators of registry enrolled varied by both race and gender. Notably, blacks (estimate=0.71, p<0.0001) and women (estimate=0.32, p=0.03) were more willing to enroll in the registry due to home visits compared with whites and men, respectively. CONCLUSIONS: Researchers must consider participant desire for maintaining memory while aging and home visits when designing culturally tailored registries. Cambridge University Press 2018-11-27 /pmc/articles/PMC6798442/ /pubmed/31660225 http://dx.doi.org/10.1017/cts.2018.326 Text en © The Association for Clinical and Translational Science 2018 http://creativecommons.org/licenses/by/4.0/ This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in anymedium, provided the original work is properly cited.
spellingShingle Implementation, Policy and Community Engagement
Glover, Crystal M.
Creel-Bulos, Christina
Patel, Lisa M.
During, Scarlett Ellis
Graham, Karen L.
Montoya, Yadira
Frick, Susan
Phillips, Judy
Shah, Raj C.
Facilitators of research registry enrollment and potential variation by race and gender
title Facilitators of research registry enrollment and potential variation by race and gender
title_full Facilitators of research registry enrollment and potential variation by race and gender
title_fullStr Facilitators of research registry enrollment and potential variation by race and gender
title_full_unstemmed Facilitators of research registry enrollment and potential variation by race and gender
title_short Facilitators of research registry enrollment and potential variation by race and gender
title_sort facilitators of research registry enrollment and potential variation by race and gender
topic Implementation, Policy and Community Engagement
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6798442/
https://www.ncbi.nlm.nih.gov/pubmed/31660225
http://dx.doi.org/10.1017/cts.2018.326
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