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Innovating public engagement and patient involvement through strategic collaboration and practice
BACKGROUND: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually define...
Autores principales: | , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6802177/ https://www.ncbi.nlm.nih.gov/pubmed/31646001 http://dx.doi.org/10.1186/s40900-019-0160-4 |
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author | Holmes, Leah Cresswell, Katharine Williams, Susannah Parsons, Suzanne Keane, Annie Wilson, Cassie Islam, Safina Joseph, Olivia Miah, Jahanara Robinson, Emily Starling, Bella |
author_facet | Holmes, Leah Cresswell, Katharine Williams, Susannah Parsons, Suzanne Keane, Annie Wilson, Cassie Islam, Safina Joseph, Olivia Miah, Jahanara Robinson, Emily Starling, Bella |
author_sort | Holmes, Leah |
collection | PubMed |
description | BACKGROUND: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually defined as actively involving people in research) have traditionally been seen as separate but have much to gain from working together towards a common goal of better health outcomes for all. METHODS: This paper describes a unique approach taken by the Public Programmes Team: a small interdisciplinary team of public engagement specialists, with backgrounds in science, community development, public engagement and involvement, policy, ethics, communications, industry, museums and creative practice, embedded within translational research infrastructure and delivery in Manchester in the North West of England. We propose a new model of professional practice – a 'cycle' of engagement and involvement – innovating across the complementary fields of public engagement and patient involvement, and working inclusively and in partnership with people in health research. Further, our approach capitalises on strategic collaboration offering economies of scale and a joined up way of working. Our ambition is to boldly experiment, learn and reflect, responsibly and based on evidence and partnerships, using methods of engagement that address issues of social justice. RESULTS: Here, we report on preliminary case studies exemplifying the impact of our approach, and data relating to achievements and learning between April 2017 and March 2018. Informed by our findings, we propose that our approach has the potential to be replicated elsewhere. CONCLUSIONS: Our practice and the beginning of its evaluation lead us to believe that our way of working and model of professional practice – the ‘cycle’ of engagement and involvement – is effective in: addressing our vision of making health research relevant and inclusive for everyone; and embedding and joining up public involvement in a busy and fertile translational health research ecosystem. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s40900-019-0160-4) contains supplementary material, which is available to authorized users. |
format | Online Article Text |
id | pubmed-6802177 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-68021772019-10-23 Innovating public engagement and patient involvement through strategic collaboration and practice Holmes, Leah Cresswell, Katharine Williams, Susannah Parsons, Suzanne Keane, Annie Wilson, Cassie Islam, Safina Joseph, Olivia Miah, Jahanara Robinson, Emily Starling, Bella Res Involv Engagem Methodology BACKGROUND: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually defined as actively involving people in research) have traditionally been seen as separate but have much to gain from working together towards a common goal of better health outcomes for all. METHODS: This paper describes a unique approach taken by the Public Programmes Team: a small interdisciplinary team of public engagement specialists, with backgrounds in science, community development, public engagement and involvement, policy, ethics, communications, industry, museums and creative practice, embedded within translational research infrastructure and delivery in Manchester in the North West of England. We propose a new model of professional practice – a 'cycle' of engagement and involvement – innovating across the complementary fields of public engagement and patient involvement, and working inclusively and in partnership with people in health research. Further, our approach capitalises on strategic collaboration offering economies of scale and a joined up way of working. Our ambition is to boldly experiment, learn and reflect, responsibly and based on evidence and partnerships, using methods of engagement that address issues of social justice. RESULTS: Here, we report on preliminary case studies exemplifying the impact of our approach, and data relating to achievements and learning between April 2017 and March 2018. Informed by our findings, we propose that our approach has the potential to be replicated elsewhere. CONCLUSIONS: Our practice and the beginning of its evaluation lead us to believe that our way of working and model of professional practice – the ‘cycle’ of engagement and involvement – is effective in: addressing our vision of making health research relevant and inclusive for everyone; and embedding and joining up public involvement in a busy and fertile translational health research ecosystem. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s40900-019-0160-4) contains supplementary material, which is available to authorized users. BioMed Central 2019-10-21 /pmc/articles/PMC6802177/ /pubmed/31646001 http://dx.doi.org/10.1186/s40900-019-0160-4 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. |
spellingShingle | Methodology Holmes, Leah Cresswell, Katharine Williams, Susannah Parsons, Suzanne Keane, Annie Wilson, Cassie Islam, Safina Joseph, Olivia Miah, Jahanara Robinson, Emily Starling, Bella Innovating public engagement and patient involvement through strategic collaboration and practice |
title | Innovating public engagement and patient involvement through strategic collaboration and practice |
title_full | Innovating public engagement and patient involvement through strategic collaboration and practice |
title_fullStr | Innovating public engagement and patient involvement through strategic collaboration and practice |
title_full_unstemmed | Innovating public engagement and patient involvement through strategic collaboration and practice |
title_short | Innovating public engagement and patient involvement through strategic collaboration and practice |
title_sort | innovating public engagement and patient involvement through strategic collaboration and practice |
topic | Methodology |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6802177/ https://www.ncbi.nlm.nih.gov/pubmed/31646001 http://dx.doi.org/10.1186/s40900-019-0160-4 |
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