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Innovating public engagement and patient involvement through strategic collaboration and practice

BACKGROUND: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually define...

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Autores principales: Holmes, Leah, Cresswell, Katharine, Williams, Susannah, Parsons, Suzanne, Keane, Annie, Wilson, Cassie, Islam, Safina, Joseph, Olivia, Miah, Jahanara, Robinson, Emily, Starling, Bella
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6802177/
https://www.ncbi.nlm.nih.gov/pubmed/31646001
http://dx.doi.org/10.1186/s40900-019-0160-4
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author Holmes, Leah
Cresswell, Katharine
Williams, Susannah
Parsons, Suzanne
Keane, Annie
Wilson, Cassie
Islam, Safina
Joseph, Olivia
Miah, Jahanara
Robinson, Emily
Starling, Bella
author_facet Holmes, Leah
Cresswell, Katharine
Williams, Susannah
Parsons, Suzanne
Keane, Annie
Wilson, Cassie
Islam, Safina
Joseph, Olivia
Miah, Jahanara
Robinson, Emily
Starling, Bella
author_sort Holmes, Leah
collection PubMed
description BACKGROUND: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually defined as actively involving people in research) have traditionally been seen as separate but have much to gain from working together towards a common goal of better health outcomes for all. METHODS: This paper describes a unique approach taken by the Public Programmes Team: a small interdisciplinary team of public engagement specialists, with backgrounds in science, community development, public engagement and involvement, policy, ethics, communications, industry, museums and creative practice, embedded within translational research infrastructure and delivery in Manchester in the North West of England. We propose a new model of professional practice – a 'cycle' of engagement and involvement – innovating across the complementary fields of public engagement and patient involvement, and working inclusively and in partnership with people in health research. Further, our approach capitalises on strategic collaboration offering economies of scale and a joined up way of working. Our ambition is to boldly experiment, learn and reflect, responsibly and based on evidence and partnerships, using methods of engagement that address issues of social justice. RESULTS: Here, we report on preliminary case studies exemplifying the impact of our approach, and data relating to achievements and learning between April 2017 and March 2018. Informed by our findings, we propose that our approach has the potential to be replicated elsewhere. CONCLUSIONS: Our practice and the beginning of its evaluation lead us to believe that our way of working and model of professional practice – the ‘cycle’ of engagement and involvement – is effective in: addressing our vision of making health research relevant and inclusive for everyone; and embedding and joining up public involvement in a busy and fertile translational health research ecosystem. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s40900-019-0160-4) contains supplementary material, which is available to authorized users.
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spelling pubmed-68021772019-10-23 Innovating public engagement and patient involvement through strategic collaboration and practice Holmes, Leah Cresswell, Katharine Williams, Susannah Parsons, Suzanne Keane, Annie Wilson, Cassie Islam, Safina Joseph, Olivia Miah, Jahanara Robinson, Emily Starling, Bella Res Involv Engagem Methodology BACKGROUND: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually defined as actively involving people in research) have traditionally been seen as separate but have much to gain from working together towards a common goal of better health outcomes for all. METHODS: This paper describes a unique approach taken by the Public Programmes Team: a small interdisciplinary team of public engagement specialists, with backgrounds in science, community development, public engagement and involvement, policy, ethics, communications, industry, museums and creative practice, embedded within translational research infrastructure and delivery in Manchester in the North West of England. We propose a new model of professional practice – a 'cycle' of engagement and involvement – innovating across the complementary fields of public engagement and patient involvement, and working inclusively and in partnership with people in health research. Further, our approach capitalises on strategic collaboration offering economies of scale and a joined up way of working. Our ambition is to boldly experiment, learn and reflect, responsibly and based on evidence and partnerships, using methods of engagement that address issues of social justice. RESULTS: Here, we report on preliminary case studies exemplifying the impact of our approach, and data relating to achievements and learning between April 2017 and March 2018. Informed by our findings, we propose that our approach has the potential to be replicated elsewhere. CONCLUSIONS: Our practice and the beginning of its evaluation lead us to believe that our way of working and model of professional practice – the ‘cycle’ of engagement and involvement – is effective in: addressing our vision of making health research relevant and inclusive for everyone; and embedding and joining up public involvement in a busy and fertile translational health research ecosystem. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1186/s40900-019-0160-4) contains supplementary material, which is available to authorized users. BioMed Central 2019-10-21 /pmc/articles/PMC6802177/ /pubmed/31646001 http://dx.doi.org/10.1186/s40900-019-0160-4 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Methodology
Holmes, Leah
Cresswell, Katharine
Williams, Susannah
Parsons, Suzanne
Keane, Annie
Wilson, Cassie
Islam, Safina
Joseph, Olivia
Miah, Jahanara
Robinson, Emily
Starling, Bella
Innovating public engagement and patient involvement through strategic collaboration and practice
title Innovating public engagement and patient involvement through strategic collaboration and practice
title_full Innovating public engagement and patient involvement through strategic collaboration and practice
title_fullStr Innovating public engagement and patient involvement through strategic collaboration and practice
title_full_unstemmed Innovating public engagement and patient involvement through strategic collaboration and practice
title_short Innovating public engagement and patient involvement through strategic collaboration and practice
title_sort innovating public engagement and patient involvement through strategic collaboration and practice
topic Methodology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6802177/
https://www.ncbi.nlm.nih.gov/pubmed/31646001
http://dx.doi.org/10.1186/s40900-019-0160-4
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