Cargando…

Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study

INTRODUCTION: Female genital mutilation (FGM) is a significant global health concern and is likely to become an increasingly important healthcare challenge in destination countries such as the UK owing to rising levels of migration from FGM-affected countries. Currently, there is no consensus on the...

Descripción completa

Detalles Bibliográficos
Autores principales: Jones, Laura, Danks, Emma, Clarke, Joanne, Alidu, Lailah, Costello, Benjamin, Jolly, Kate, Byrne, Alison, Fassam-Wright, Meg, Latthe, Pallavi, Taylor, Julie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6803147/
https://www.ncbi.nlm.nih.gov/pubmed/31628134
http://dx.doi.org/10.1136/bmjopen-2019-034140
_version_ 1783460904375943168
author Jones, Laura
Danks, Emma
Clarke, Joanne
Alidu, Lailah
Costello, Benjamin
Jolly, Kate
Byrne, Alison
Fassam-Wright, Meg
Latthe, Pallavi
Taylor, Julie
author_facet Jones, Laura
Danks, Emma
Clarke, Joanne
Alidu, Lailah
Costello, Benjamin
Jolly, Kate
Byrne, Alison
Fassam-Wright, Meg
Latthe, Pallavi
Taylor, Julie
author_sort Jones, Laura
collection PubMed
description INTRODUCTION: Female genital mutilation (FGM) is a significant global health concern and is likely to become an increasingly important healthcare challenge in destination countries such as the UK owing to rising levels of migration from FGM-affected countries. Currently, there is no consensus on the optimal timing of deinfibulation (opening) surgery for women who have experienced type 3 FGM and care provision remains suboptimal in the UK. This qualitative study aims to explore the views of survivors, male partners and healthcare professionals (HCPs) on the timing of deinfibulation and delivery of NHS FGM services. METHODS AND ANALYSIS: A qualitative study, informed by the Sound of Silence conceptual framework, will be undertaken via two work packages (WPs). WP1 will explore views on timing preferences for deinfibulation and NHS FGM services through interviews and discussion groups with FGM survivors (n~50), male partners (n~10) and HCPs (n~50). WP2 will use established techniques via two workshops (community (n~20–25 participants) and national stakeholder (n~30–35 participants)) to synthesise qualitative research findings and inform best practice and policy recommendations around the timing of deinfibulation and NHS FGM care provision. Supported by trained interpreters, data collection will be audio recorded and transcribed. Data will be analysed using the framework method to facilitate a systematic mapping and exploration of qualitative data from multiple sources. ETHICS AND DISSEMINATION: The study has received ethical approval from the North West Greater Manchester East Research Ethics Committee (18/NW/0498). The outputs for this study will be recommendations for best practice and policy around FGM care provision that reflects the views and preferences of key stakeholders. The findings will be disseminated via conference presentations, peer-reviewed publications, patient groups, third sector organisations and social media. TRIAL REGISTRATION NUMBER: ISRCTN14710507.
format Online
Article
Text
id pubmed-6803147
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher BMJ Publishing Group
record_format MEDLINE/PubMed
spelling pubmed-68031472019-10-31 Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study Jones, Laura Danks, Emma Clarke, Joanne Alidu, Lailah Costello, Benjamin Jolly, Kate Byrne, Alison Fassam-Wright, Meg Latthe, Pallavi Taylor, Julie BMJ Open Public Health INTRODUCTION: Female genital mutilation (FGM) is a significant global health concern and is likely to become an increasingly important healthcare challenge in destination countries such as the UK owing to rising levels of migration from FGM-affected countries. Currently, there is no consensus on the optimal timing of deinfibulation (opening) surgery for women who have experienced type 3 FGM and care provision remains suboptimal in the UK. This qualitative study aims to explore the views of survivors, male partners and healthcare professionals (HCPs) on the timing of deinfibulation and delivery of NHS FGM services. METHODS AND ANALYSIS: A qualitative study, informed by the Sound of Silence conceptual framework, will be undertaken via two work packages (WPs). WP1 will explore views on timing preferences for deinfibulation and NHS FGM services through interviews and discussion groups with FGM survivors (n~50), male partners (n~10) and HCPs (n~50). WP2 will use established techniques via two workshops (community (n~20–25 participants) and national stakeholder (n~30–35 participants)) to synthesise qualitative research findings and inform best practice and policy recommendations around the timing of deinfibulation and NHS FGM care provision. Supported by trained interpreters, data collection will be audio recorded and transcribed. Data will be analysed using the framework method to facilitate a systematic mapping and exploration of qualitative data from multiple sources. ETHICS AND DISSEMINATION: The study has received ethical approval from the North West Greater Manchester East Research Ethics Committee (18/NW/0498). The outputs for this study will be recommendations for best practice and policy around FGM care provision that reflects the views and preferences of key stakeholders. The findings will be disseminated via conference presentations, peer-reviewed publications, patient groups, third sector organisations and social media. TRIAL REGISTRATION NUMBER: ISRCTN14710507. BMJ Publishing Group 2019-10-17 /pmc/articles/PMC6803147/ /pubmed/31628134 http://dx.doi.org/10.1136/bmjopen-2019-034140 Text en © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Public Health
Jones, Laura
Danks, Emma
Clarke, Joanne
Alidu, Lailah
Costello, Benjamin
Jolly, Kate
Byrne, Alison
Fassam-Wright, Meg
Latthe, Pallavi
Taylor, Julie
Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study
title Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study
title_full Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study
title_fullStr Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study
title_full_unstemmed Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study
title_short Exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and NHS FGM care provision (the FGM Sister Study): protocol for a qualitative study
title_sort exploring the views of female genital mutilation survivors, their male partners and healthcare professionals on the timing of deinfibulation surgery and nhs fgm care provision (the fgm sister study): protocol for a qualitative study
topic Public Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6803147/
https://www.ncbi.nlm.nih.gov/pubmed/31628134
http://dx.doi.org/10.1136/bmjopen-2019-034140
work_keys_str_mv AT joneslaura exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT danksemma exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT clarkejoanne exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT alidulailah exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT costellobenjamin exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT jollykate exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT byrnealison exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT fassamwrightmeg exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT latthepallavi exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy
AT taylorjulie exploringtheviewsoffemalegenitalmutilationsurvivorstheirmalepartnersandhealthcareprofessionalsonthetimingofdeinfibulationsurgeryandnhsfgmcareprovisionthefgmsisterstudyprotocolforaqualitativestudy