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“Putting people in charge of their own health and care?” Using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency

INTRODUCTION: Policy discussions reference ideas of informed and active users of e‐health services who gain agency through self‐management, choice and care delivered outside clinical settings. In this article, we aim to problematize this association by “thinking with” material from multiple discipli...

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Autores principales: Baraitser, Paula, Cribb, Alan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6803406/
https://www.ncbi.nlm.nih.gov/pubmed/31054218
http://dx.doi.org/10.1111/hex.12895
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author Baraitser, Paula
Cribb, Alan
author_facet Baraitser, Paula
Cribb, Alan
author_sort Baraitser, Paula
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description INTRODUCTION: Policy discussions reference ideas of informed and active users of e‐health services who gain agency through self‐management, choice and care delivered outside clinical settings. In this article, we aim to problematize this association by “thinking with” material from multiple disciplines to generate higher order insights to inform service development, research and policy. METHODS: Drawing on meta‐narrative review methods, we gathered perspectives from multiple disciplines using an iterative process of expert consultation to identify seminal papers citation mapping, synthesis and peer review. RESULTS: We identify six relevant paradigms from sociology, philosophy, health services research, public health, the study of social movements and computer studies. Bringing these paradigms together illuminates the contrasting epistemological and ontological framings that co‐exist in this area, including competing conceptualizations of e‐health technologies as: neutral tools for service delivery, mediators within complex and unpredictable clinical interactions and as agents in their own right. DISCUSSION: There is a need for e‐health policy to recognize many human and non‐human actors, the blurred boundaries between them and the unpredictable and evolving interactions that constitute engagement with e‐health care. Established models for e‐health service development and policy making are not designed for this landscape. There is nothing to be gained by asking whether e‐health, in general, either “increases” or “decreases” agency. Rather specific types and aspects of e‐health have diverse effects and can be simultaneously enabling and disempowering, and be differentially experienced by differently positioned and resourced actors.
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spelling pubmed-68034062019-10-24 “Putting people in charge of their own health and care?” Using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency Baraitser, Paula Cribb, Alan Health Expect Review Articles INTRODUCTION: Policy discussions reference ideas of informed and active users of e‐health services who gain agency through self‐management, choice and care delivered outside clinical settings. In this article, we aim to problematize this association by “thinking with” material from multiple disciplines to generate higher order insights to inform service development, research and policy. METHODS: Drawing on meta‐narrative review methods, we gathered perspectives from multiple disciplines using an iterative process of expert consultation to identify seminal papers citation mapping, synthesis and peer review. RESULTS: We identify six relevant paradigms from sociology, philosophy, health services research, public health, the study of social movements and computer studies. Bringing these paradigms together illuminates the contrasting epistemological and ontological framings that co‐exist in this area, including competing conceptualizations of e‐health technologies as: neutral tools for service delivery, mediators within complex and unpredictable clinical interactions and as agents in their own right. DISCUSSION: There is a need for e‐health policy to recognize many human and non‐human actors, the blurred boundaries between them and the unpredictable and evolving interactions that constitute engagement with e‐health care. Established models for e‐health service development and policy making are not designed for this landscape. There is nothing to be gained by asking whether e‐health, in general, either “increases” or “decreases” agency. Rather specific types and aspects of e‐health have diverse effects and can be simultaneously enabling and disempowering, and be differentially experienced by differently positioned and resourced actors. John Wiley and Sons Inc. 2019-05-03 2019-10 /pmc/articles/PMC6803406/ /pubmed/31054218 http://dx.doi.org/10.1111/hex.12895 Text en © 2019 The Authors. Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review Articles
Baraitser, Paula
Cribb, Alan
“Putting people in charge of their own health and care?” Using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency
title “Putting people in charge of their own health and care?” Using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency
title_full “Putting people in charge of their own health and care?” Using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency
title_fullStr “Putting people in charge of their own health and care?” Using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency
title_full_unstemmed “Putting people in charge of their own health and care?” Using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency
title_short “Putting people in charge of their own health and care?” Using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency
title_sort “putting people in charge of their own health and care?” using meta‐narrative review and the example of online sexual health services to re‐think relationships between e‐health and agency
topic Review Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6803406/
https://www.ncbi.nlm.nih.gov/pubmed/31054218
http://dx.doi.org/10.1111/hex.12895
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