Cargando…

Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?

This article investigates a high-profile and ongoing dilemma for healthcare professionals (HCPs), namely whether the existence of a (legal) duty of care to genetic relatives of a patient is a help or a hindrance in deciding what to do in cases where a patient’s genetic information may have relevance...

Descripción completa

Detalles Bibliográficos
Autores principales:	Dove, Edward S, Chico, Vicky, Fay, Michael, Laurie, Graeme, Lucassen, Anneke M, Postan, Emily
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2019
Materias:	Clinical Ethics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6820144/ https://www.ncbi.nlm.nih.gov/pubmed/31123189 http://dx.doi.org/10.1136/medethics-2018-105229

Ejemplares similares

Computers Can Be Compatible with Confidentiality
por: Horner, J Stuart
Publicado: (1997)

Alerting relatives about heritable risks: the limits of confidentiality
por: Lucassen, Anneke, et al.
Publicado: (2018)

Discrepancies in self-reported financial conflicts of interest disclosures by physicians: a systematic review
por: Taheri, Cameron, et al.
Publicado: (2021)

Using biomarkers in acute medicine to prevent hearing loss: should this require specific consent?
por: Coulson-Smith, Peta, et al.
Publicado: (2020)

A cross-sectional examination of conflict-of-interest disclosures of physician-authors publishing in high-impact US medical journals
por: Baraldi, James H, et al.
Publicado: (2022)

Disclosure of non-recent (historic) childhood sexual abuse: What should researchers do?
por: Silverio, Sergio A., et al.
Publicado: (2021)

Conflict of interest disclosure slides at the European Society of Cardiology Congress 2016 in Rome: are they displayed long enough to assess their content? A cross-sectional study
por: van Lieshout, Christianne T, et al.
Publicado: (2018)

Exploring the Legacies of Filmed Patient Narratives: The Interpretation and Appropriation of Patient Films by Health Care Staff
por: Adams, Mary, et al.
Publicado: (2015)

Towards a national genomics medicine service: the challenges facing clinical-research hybrid practices and the case of the 100 000 genomes project
por: Dheensa, Sandi, et al.
Publicado: (2018)

Is it acceptable to contact an anonymous egg donor to facilitate diagnostic genetic testing for the donor-conceived child?
por: Horton, Rachel, et al.
Publicado: (2019)

Should we be Royal?
por: Kealy-Bateman, Warren, et al.
Publicado: (2021)

Health data protection and confidentiality in EU BTC legislation: ethical and safety standards
por: Olimid, Anca Parmena, et al.
Publicado: (2021)

Should non-disclosures be considered as morally equivalent to lies within the doctor–patient relationship?
por: Cox, Caitriona L, et al.
Publicado: (2016)

Moving towards a better path? A mixed-method examination of China’s reforms to remedy medical corruption from pharmaceutical firms
por: Shi, Jianwei, et al.
Publicado: (2018)

Reconsidering ‘minimal risk’ to expand the repertoire of trials with waiver of informed consent for research
por: Monach, Paul A, et al.
Publicado: (2021)

Research Use of Ecological Momentary Assessment for Adverse Event Monitoring Following Amyloid-β Results Disclosure
por: Mattos, Meghan K., et al.
Publicado: (2019)

Details of risk–benefit communication in informed consent documents for phase I/II trials
por: Kahrass, Hannes, et al.
Publicado: (2020)

Research priorities relating to the debate on assisted dying: what do we still need to know? Results of a modified Delphi technique
por: Rodgers, Mark, et al.
Publicado: (2016)

Confidentiality, public interest, and the human right to science: when can confidential information be used for the benefit of the wider community?
por: Dove, Edward S
Publicado: (2023)

Money-oriented risk-takers or deliberate decision-makers: a cross-sectional survey study of participants in controlled human infection trials
por: Hoogerwerf, Marie-Astrid, et al.
Publicado: (2020)

Using a genetic test result in the care of family members: how does the duty of confidentiality apply?
por: Parker, Michael, et al.
Publicado: (2018)

Unveiling Realities: Exploring and Uncovering Young Adults’ Views on Navigating Confidentiality and Disclosure in Healthcare Settings in Bangalore, Southern India
por: Dias, Andrea N, et al.
Publicado: (2023)

Parental comprehension of the benefits/risks of first-line randomised clinical trials in children with solid tumours: a two-stage cross-sectional interview study
por: Chappuy, Hélène, et al.
Publicado: (2013)

Diverse experts’ perspectives on ethical issues of using machine learning to predict HIV/AIDS risk in sub-Saharan Africa: a modified Delphi study
por: Nichol, Ariadne A, et al.
Publicado: (2021)

The effect of a conflict of interest disclosure form using closed questions on the number of positive conflicts of interest declared – a controlled study
por: Baethge, Christopher
Publicado: (2013)

‘Adding another spinning plate to an already busy life’. Benefits and risks in patient partner–researcher relationships: a qualitative study of patient partners’ experiences in a Canadian health research setting
por: Leese, Jenny, et al.
Publicado: (2018)

Penile transplantation as an appropriate response to botched traditional circumcisions in South Africa: an argument against
por: Moodley, Keymanthri, et al.
Publicado: (2018)

Conflict of interest and disclosure in healthcare: We can do better
por: Solberg, Timothy D.
Publicado: (2023)

Approaching confidentiality at a familial level in genomic medicine: a focus group study with healthcare professionals
por: Dheensa, Sandi, et al.
Publicado: (2017)

The Lived Experience Of Participants in an African RandomiseD trial (LEOPARD): protocol for an in-depth qualitative study within a multisite randomised controlled trial for HIV-associated cryptococcal meningitis
por: Lawrence, David S, et al.
Publicado: (2021)

'It’s not something you can take in your hands'. Swiss experts’ perspectives on health data ownership: an interview-based study
por: Martani, Andrea, et al.
Publicado: (2021)

Informed consent: Are we doing enough?
por: Pranati,
Publicado: (2010)

“We can tell a good teacher who cares, understands, and can be confidential about it”: youth and caregiver experiences with HIV disclosure to schools in Kenya
por: Moraa, Hellen, et al.
Publicado: (2023)

‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine
por: Dheensa, Sandi, et al.
Publicado: (2016)

Better Research Ethics Committees: Comments on Guidance from the Department of Health and the European Community
por: Diamond, A L, et al.
Publicado: (1993)

Non-disclosure of genetic risks: The case for developing legal wrongs
por: Chico, Victoria
Publicado: (2016)

Completion of consent forms in colorectal surgery: are we getting it right?
por: Webster, Peter John, et al.
Publicado: (2012)

Navigating internet-based misinformation with patients in the clinic
por: Sood, Aditya, et al.
Publicado: (2023)

Knowledge of confidentiality, consent and information disclosure is not affected by position or experience in adult critical care
por: Lowings, M, et al.
Publicado: (2013)

“Eugenics talk” and the language of bioethics
por: Wilkinson, S
Publicado: (2008)

Cannot write session to /tmp/vufind_sessions/sess_6bnnjh4rlh8q90ia2dhhbumgnr