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Engaging children and families in pediatric Health Research: a scoping review

AIM: Patient engagement (PE) in pediatric health services research is challenging due to contextual factors such as busyness of parenting, work schedules, and diverse family structures. This scoping review seeks to comprehensively map current PE strategies with parents and families across existing p...

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Autores principales: Flynn, Rachel, Walton, Sarah, Scott, Shannon D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6827239/
https://www.ncbi.nlm.nih.gov/pubmed/31700676
http://dx.doi.org/10.1186/s40900-019-0168-9
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author Flynn, Rachel
Walton, Sarah
Scott, Shannon D.
author_facet Flynn, Rachel
Walton, Sarah
Scott, Shannon D.
author_sort Flynn, Rachel
collection PubMed
description AIM: Patient engagement (PE) in pediatric health services research is challenging due to contextual factors such as busyness of parenting, work schedules, and diverse family structures. This scoping review seeks to comprehensively map current PE strategies with parents and families across existing published pediatric health research literature. METHODS: We followed Arksey and O’Malley (2005) and Levac et al., (2010) six-stage scoping review process. We conducted the search strategy in Medline, Embase, CINAHL, and Psychinfo databases. Data were extracted from included articles; evidence tables were developed and narrative synthesis was completed. RESULTS: Of 3925 retrieved records, seventeen articles were included in the review. Patient engagement primarily occurred through strategies such as advisory groups, meetings, focus groups and interviews. Strategies were used to engage patients at various levels, for different purposes (e.g., to inform, participate, consult, involve collaborate and/or lead). These strategies were also used at various stages of the research process. Navigating power differences, time and money were commonly reported challenges. Inconsistent terminology plagued (e.g., stakeholder engagement, consumer participation, patient and public involvement, participatory research) this body of literature and clarity is urgently needed. CONCLUSIONS: This review offers insights into current PE strategies used in pediatric health services research and offers insight for researchers considering employing PE in the future.
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spelling pubmed-68272392019-11-07 Engaging children and families in pediatric Health Research: a scoping review Flynn, Rachel Walton, Sarah Scott, Shannon D. Res Involv Engagem Review Article AIM: Patient engagement (PE) in pediatric health services research is challenging due to contextual factors such as busyness of parenting, work schedules, and diverse family structures. This scoping review seeks to comprehensively map current PE strategies with parents and families across existing published pediatric health research literature. METHODS: We followed Arksey and O’Malley (2005) and Levac et al., (2010) six-stage scoping review process. We conducted the search strategy in Medline, Embase, CINAHL, and Psychinfo databases. Data were extracted from included articles; evidence tables were developed and narrative synthesis was completed. RESULTS: Of 3925 retrieved records, seventeen articles were included in the review. Patient engagement primarily occurred through strategies such as advisory groups, meetings, focus groups and interviews. Strategies were used to engage patients at various levels, for different purposes (e.g., to inform, participate, consult, involve collaborate and/or lead). These strategies were also used at various stages of the research process. Navigating power differences, time and money were commonly reported challenges. Inconsistent terminology plagued (e.g., stakeholder engagement, consumer participation, patient and public involvement, participatory research) this body of literature and clarity is urgently needed. CONCLUSIONS: This review offers insights into current PE strategies used in pediatric health services research and offers insight for researchers considering employing PE in the future. BioMed Central 2019-11-04 /pmc/articles/PMC6827239/ /pubmed/31700676 http://dx.doi.org/10.1186/s40900-019-0168-9 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Review Article
Flynn, Rachel
Walton, Sarah
Scott, Shannon D.
Engaging children and families in pediatric Health Research: a scoping review
title Engaging children and families in pediatric Health Research: a scoping review
title_full Engaging children and families in pediatric Health Research: a scoping review
title_fullStr Engaging children and families in pediatric Health Research: a scoping review
title_full_unstemmed Engaging children and families in pediatric Health Research: a scoping review
title_short Engaging children and families in pediatric Health Research: a scoping review
title_sort engaging children and families in pediatric health research: a scoping review
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6827239/
https://www.ncbi.nlm.nih.gov/pubmed/31700676
http://dx.doi.org/10.1186/s40900-019-0168-9
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