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INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS

LGBT (lesbian, gay, bisexual, and transgender) older adults have been found to have elevated risks of cognitive impairment. Maintaining quality of life is a challenge for those experiencing cognitive decline and their caregivers. Whereas support networks are essential for quality of life, LGBT older...

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Autores principales: Goldsen, Karen Fredriksen, Teri, Linda
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6840275/
http://dx.doi.org/10.1093/geroni/igz038.1246
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author Goldsen, Karen Fredriksen
Teri, Linda
author_facet Goldsen, Karen Fredriksen
Teri, Linda
author_sort Goldsen, Karen Fredriksen
collection PubMed
description LGBT (lesbian, gay, bisexual, and transgender) older adults have been found to have elevated risks of cognitive impairment. Maintaining quality of life is a challenge for those experiencing cognitive decline and their caregivers. Whereas support networks are essential for quality of life, LGBT older adults with dementia may face unique risks, such as stigma, social isolation, lack of family support, and barriers to healthcare. Aging with Pride: IDEA (Innovations in Dementia Empowerment and Action), is the first federally funded clinical trial to test an intervention designed to improve quality of life of LGBT older adults with dementia and caregivers adapting a preexisting program teaching behavioral strategies and physical exercises. The intervention incorporated empirical findings from a longitudinal study, Aging with Pride: National Health, Aging, and Sexuality/Gender Study (NHAS) and developed innovative and culturally responsive approaches. Kim and colleagues examine predictors of longitudinal changes in physical functioning among LGBT older adults with cognitive impairment focusing on physical, social, and recreational activities as well as stigma. Emlet and colleagues investigate caregiving experiences among LGBT older adults and identify factors that are associated with their physical and mental health. Lastly, Fredriksen Goldsen and colleagues introduce how the modifiable factors identified from the Aging with Pride: NHAS were incorporated in the IDEA intervention and evaluate the processes of the culturally-responsive approaches implemented in the study. The presentations in this symposium illustrate the importance of tailoring clinical trial studies for hard-to-reach and underserved populations with dementia responding to their unique health needs.
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spelling pubmed-68402752019-11-14 INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS Goldsen, Karen Fredriksen Teri, Linda Innov Aging Session 1415 (Symposium) LGBT (lesbian, gay, bisexual, and transgender) older adults have been found to have elevated risks of cognitive impairment. Maintaining quality of life is a challenge for those experiencing cognitive decline and their caregivers. Whereas support networks are essential for quality of life, LGBT older adults with dementia may face unique risks, such as stigma, social isolation, lack of family support, and barriers to healthcare. Aging with Pride: IDEA (Innovations in Dementia Empowerment and Action), is the first federally funded clinical trial to test an intervention designed to improve quality of life of LGBT older adults with dementia and caregivers adapting a preexisting program teaching behavioral strategies and physical exercises. The intervention incorporated empirical findings from a longitudinal study, Aging with Pride: National Health, Aging, and Sexuality/Gender Study (NHAS) and developed innovative and culturally responsive approaches. Kim and colleagues examine predictors of longitudinal changes in physical functioning among LGBT older adults with cognitive impairment focusing on physical, social, and recreational activities as well as stigma. Emlet and colleagues investigate caregiving experiences among LGBT older adults and identify factors that are associated with their physical and mental health. Lastly, Fredriksen Goldsen and colleagues introduce how the modifiable factors identified from the Aging with Pride: NHAS were incorporated in the IDEA intervention and evaluate the processes of the culturally-responsive approaches implemented in the study. The presentations in this symposium illustrate the importance of tailoring clinical trial studies for hard-to-reach and underserved populations with dementia responding to their unique health needs. Oxford University Press 2019-11-08 /pmc/articles/PMC6840275/ http://dx.doi.org/10.1093/geroni/igz038.1246 Text en © The Author(s) 2019. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Session 1415 (Symposium)
Goldsen, Karen Fredriksen
Teri, Linda
INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS
title INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS
title_full INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS
title_fullStr INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS
title_full_unstemmed INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS
title_short INTEREST GROUP SESSION—RAINBOW RESEARCH GROUP: ADAPTING AN EVIDENCE-BASED INTERVENTION TO LGBT ADULTS WITH DEMENTIA AND CARE PARTNERS: MOBILIZING SUPPORT NETWORKS
title_sort interest group session—rainbow research group: adapting an evidence-based intervention to lgbt adults with dementia and care partners: mobilizing support networks
topic Session 1415 (Symposium)
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6840275/
http://dx.doi.org/10.1093/geroni/igz038.1246
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