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EDUCATIONAL OUTREACH IN ALZHEIMER’S DISEASE AMONG OLDER AFRICAN AMERICANS

Alzheimer’s disease (AD) is a growing public health problem that continues to disproportionally impact African Americans. African Americans are twice as likely to be afflicted with AD compared to non-Latino Whites. However, continued lack of inclusion of African Americans in clinical research trials...

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Autores principales: Shaw, Ashley R, Bright, Briana, Puchalt, Jaime Perales, Vidoni, Eric, Amparan, Gabriela, Crawford, Broderick
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6844700/
http://dx.doi.org/10.1093/geroni/igz038.3166
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author Shaw, Ashley R
Bright, Briana
Puchalt, Jaime Perales
Vidoni, Eric
Amparan, Gabriela
Crawford, Broderick
author_facet Shaw, Ashley R
Bright, Briana
Puchalt, Jaime Perales
Vidoni, Eric
Amparan, Gabriela
Crawford, Broderick
author_sort Shaw, Ashley R
collection PubMed
description Alzheimer’s disease (AD) is a growing public health problem that continues to disproportionally impact African Americans. African Americans are twice as likely to be afflicted with AD compared to non-Latino Whites. However, continued lack of inclusion of African Americans in clinical research trials may reduce the generalizability of future treatments. We investigated how culturally tailored prevention education impacted knowledge, attitudes, and beliefs of AD among older African Americans. We also assessed how culturally tailored prevention education impacted participation in clinical research trials among older African Americans. Researchers delivered “Aging with Grace,” a culturally tailored dementia program to community and faith-based organizations. Demographic information, knowledge of AD, and beliefs of clinical research trials were collected using pre- and post-surveys. In addition, information from community members interested in enrolling in a clinical research study was acquired. A total of 66 community members attended “Aging with Grace” from March to August 2019. 32% of participants perceived an increase in AD knowledge. Most participants (89.1%) believed that more African Americans should participate in research and 29 (44%) expressed interest in enrolling in clinical trials (observational – 73.2%, prevention – 68.2%, treatment – 24.4%). Most participants (93.1%) rated the presentation highly informative and 78% reported that the presentation was very applicable to their daily life. Overall knowledge of AD and interest in participating clinical trials improved with culturally tailored education. Future research should explore ways of enhancing knowledge and participation to enhance inclusion in prevention and treatment trials.
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spelling pubmed-68447002019-11-18 EDUCATIONAL OUTREACH IN ALZHEIMER’S DISEASE AMONG OLDER AFRICAN AMERICANS Shaw, Ashley R Bright, Briana Puchalt, Jaime Perales Vidoni, Eric Amparan, Gabriela Crawford, Broderick Innov Aging Session Lb935 (Late Breaking Poster) Alzheimer’s disease (AD) is a growing public health problem that continues to disproportionally impact African Americans. African Americans are twice as likely to be afflicted with AD compared to non-Latino Whites. However, continued lack of inclusion of African Americans in clinical research trials may reduce the generalizability of future treatments. We investigated how culturally tailored prevention education impacted knowledge, attitudes, and beliefs of AD among older African Americans. We also assessed how culturally tailored prevention education impacted participation in clinical research trials among older African Americans. Researchers delivered “Aging with Grace,” a culturally tailored dementia program to community and faith-based organizations. Demographic information, knowledge of AD, and beliefs of clinical research trials were collected using pre- and post-surveys. In addition, information from community members interested in enrolling in a clinical research study was acquired. A total of 66 community members attended “Aging with Grace” from March to August 2019. 32% of participants perceived an increase in AD knowledge. Most participants (89.1%) believed that more African Americans should participate in research and 29 (44%) expressed interest in enrolling in clinical trials (observational – 73.2%, prevention – 68.2%, treatment – 24.4%). Most participants (93.1%) rated the presentation highly informative and 78% reported that the presentation was very applicable to their daily life. Overall knowledge of AD and interest in participating clinical trials improved with culturally tailored education. Future research should explore ways of enhancing knowledge and participation to enhance inclusion in prevention and treatment trials. Oxford University Press 2019-11-08 /pmc/articles/PMC6844700/ http://dx.doi.org/10.1093/geroni/igz038.3166 Text en © The Author(s) 2019. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Session Lb935 (Late Breaking Poster)
Shaw, Ashley R
Bright, Briana
Puchalt, Jaime Perales
Vidoni, Eric
Amparan, Gabriela
Crawford, Broderick
EDUCATIONAL OUTREACH IN ALZHEIMER’S DISEASE AMONG OLDER AFRICAN AMERICANS
title EDUCATIONAL OUTREACH IN ALZHEIMER’S DISEASE AMONG OLDER AFRICAN AMERICANS
title_full EDUCATIONAL OUTREACH IN ALZHEIMER’S DISEASE AMONG OLDER AFRICAN AMERICANS
title_fullStr EDUCATIONAL OUTREACH IN ALZHEIMER’S DISEASE AMONG OLDER AFRICAN AMERICANS
title_full_unstemmed EDUCATIONAL OUTREACH IN ALZHEIMER’S DISEASE AMONG OLDER AFRICAN AMERICANS
title_short EDUCATIONAL OUTREACH IN ALZHEIMER’S DISEASE AMONG OLDER AFRICAN AMERICANS
title_sort educational outreach in alzheimer’s disease among older african americans
topic Session Lb935 (Late Breaking Poster)
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6844700/
http://dx.doi.org/10.1093/geroni/igz038.3166
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