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THE IMPACT OF AN EARLY-STAGE DYADIC CARE PLANNING INTERVENTION ON CAREGIVER BURDEN
Evidence supports the development of proactive, dyadic interventions for used in early-stage dementia. This type of intervention leads to more effective decision making which can reduce subsequent caregiver stress and burden. SHARE (Support, Health, Activities, Resources, Education), a six-session c...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6846009/ http://dx.doi.org/10.1093/geroni/igz038.797 |
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author | Orsulic-Jeras, Silvia Whitlatch, Carol Johnson, Justin |
author_facet | Orsulic-Jeras, Silvia Whitlatch, Carol Johnson, Justin |
author_sort | Orsulic-Jeras, Silvia |
collection | PubMed |
description | Evidence supports the development of proactive, dyadic interventions for used in early-stage dementia. This type of intervention leads to more effective decision making which can reduce subsequent caregiver stress and burden. SHARE (Support, Health, Activities, Resources, Education), a six-session counseling-based intervention, encourages and supports care dyads to have important discussions about health care preferences that are often delayed or avoided until later-stage dementia. Typically, both the PWD and caregiver assume that most of the help will be delivered by the caregiver. SHARE aims to expand the network of care by evenly distributing care task responsibilities from the caregiver alone to other potential sources of support: family/friends and paid service providers. Early-stage dyads (n=63) successfully created a balanced and manageable plan of care with the help of their SHARE Counselor over a 6-month period. Follow-up interviews assessed care dyads from 1.5 to 2 years after their participation in SHARE ended. Analyses determined change in PWD ADL needs from enrollment (T1) to two years later (T2) and impact on caregiver task burden. Paired samples t-tests indicated a significant increase in PWD need for assistance with 18 ADLs, from a T1 mean of 8.76 to a T2 mean of 11.34 (t=-6.72, p=.000). This paper examines: 1) the benefits and challenges of creating a Care Plan in the early stages of dementia, 2) how SHARE dyads utilized their Care Plans when PWDs needed assistance, and 3) if reliance on family/friend and paid service provider options were realistic over time. |
format | Online Article Text |
id | pubmed-6846009 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-68460092019-11-18 THE IMPACT OF AN EARLY-STAGE DYADIC CARE PLANNING INTERVENTION ON CAREGIVER BURDEN Orsulic-Jeras, Silvia Whitlatch, Carol Johnson, Justin Innov Aging Session 1160 (Paper) Evidence supports the development of proactive, dyadic interventions for used in early-stage dementia. This type of intervention leads to more effective decision making which can reduce subsequent caregiver stress and burden. SHARE (Support, Health, Activities, Resources, Education), a six-session counseling-based intervention, encourages and supports care dyads to have important discussions about health care preferences that are often delayed or avoided until later-stage dementia. Typically, both the PWD and caregiver assume that most of the help will be delivered by the caregiver. SHARE aims to expand the network of care by evenly distributing care task responsibilities from the caregiver alone to other potential sources of support: family/friends and paid service providers. Early-stage dyads (n=63) successfully created a balanced and manageable plan of care with the help of their SHARE Counselor over a 6-month period. Follow-up interviews assessed care dyads from 1.5 to 2 years after their participation in SHARE ended. Analyses determined change in PWD ADL needs from enrollment (T1) to two years later (T2) and impact on caregiver task burden. Paired samples t-tests indicated a significant increase in PWD need for assistance with 18 ADLs, from a T1 mean of 8.76 to a T2 mean of 11.34 (t=-6.72, p=.000). This paper examines: 1) the benefits and challenges of creating a Care Plan in the early stages of dementia, 2) how SHARE dyads utilized their Care Plans when PWDs needed assistance, and 3) if reliance on family/friend and paid service provider options were realistic over time. Oxford University Press 2019-11-08 /pmc/articles/PMC6846009/ http://dx.doi.org/10.1093/geroni/igz038.797 Text en © The Author(s) 2019. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Session 1160 (Paper) Orsulic-Jeras, Silvia Whitlatch, Carol Johnson, Justin THE IMPACT OF AN EARLY-STAGE DYADIC CARE PLANNING INTERVENTION ON CAREGIVER BURDEN |
title | THE IMPACT OF AN EARLY-STAGE DYADIC CARE PLANNING INTERVENTION ON CAREGIVER BURDEN |
title_full | THE IMPACT OF AN EARLY-STAGE DYADIC CARE PLANNING INTERVENTION ON CAREGIVER BURDEN |
title_fullStr | THE IMPACT OF AN EARLY-STAGE DYADIC CARE PLANNING INTERVENTION ON CAREGIVER BURDEN |
title_full_unstemmed | THE IMPACT OF AN EARLY-STAGE DYADIC CARE PLANNING INTERVENTION ON CAREGIVER BURDEN |
title_short | THE IMPACT OF AN EARLY-STAGE DYADIC CARE PLANNING INTERVENTION ON CAREGIVER BURDEN |
title_sort | impact of an early-stage dyadic care planning intervention on caregiver burden |
topic | Session 1160 (Paper) |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6846009/ http://dx.doi.org/10.1093/geroni/igz038.797 |
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