Cargando…

INTEREST GROUP SESSION—HOSPICE, PALLIATIVE AND END-OF-LIFE CARE: ADDRESSING ADVANCED ILLNESS CHALLENGES THROUGH SYNERGY, PLANNING, COLLABORATION, AND ADVOCACY

Advanced illness occurs when health conditions become serious, general health and functioning declines, and treatments begin to lose their impact. Advanced care planning (ACP) is critical, but challenges such as communication barriers, system fragmentation, and a lack of formal and informal supports...

Descripción completa

Detalles Bibliográficos
Autores principales: Hopp, Faith P, Nedjat-Haiem, Frances R
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6846603/
http://dx.doi.org/10.1093/geroni/igz038.643
_version_ 1783468915371802624
author Hopp, Faith P
Nedjat-Haiem, Frances R
author_facet Hopp, Faith P
Nedjat-Haiem, Frances R
author_sort Hopp, Faith P
collection PubMed
description Advanced illness occurs when health conditions become serious, general health and functioning declines, and treatments begin to lose their impact. Advanced care planning (ACP) is critical, but challenges such as communication barriers, system fragmentation, and a lack of formal and informal supports can negatively influence ACP and quality of life. How can diverse groups of persons with advanced illness, their family members and friends have greater synergy when planning for care in the face of serious illness? What are the best practices for planning and provision of a spectrum of needed services and support during the dying process and afterwards? We extend a conversation important for formal and informal network members to transform the culture of ACP, death, dying, and bereavement for diverse vulnerable populations. For this symposium, we will present information on ACP and care for LGBT populations and older Latinos, those living in long-term care settings, and persons receiving Adult Protective Services (APS). We will discuss strategies for synergy, collaboration, and advocacy among persons with advanced illness and their formal and informal care networks as a means of reducing health disparities and promoting self-determination in the midst of advanced illness challenges.
format Online
Article
Text
id pubmed-6846603
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher Oxford University Press
record_format MEDLINE/PubMed
spelling pubmed-68466032019-11-18 INTEREST GROUP SESSION—HOSPICE, PALLIATIVE AND END-OF-LIFE CARE: ADDRESSING ADVANCED ILLNESS CHALLENGES THROUGH SYNERGY, PLANNING, COLLABORATION, AND ADVOCACY Hopp, Faith P Nedjat-Haiem, Frances R Innov Aging Session 1000 (Symposium) Advanced illness occurs when health conditions become serious, general health and functioning declines, and treatments begin to lose their impact. Advanced care planning (ACP) is critical, but challenges such as communication barriers, system fragmentation, and a lack of formal and informal supports can negatively influence ACP and quality of life. How can diverse groups of persons with advanced illness, their family members and friends have greater synergy when planning for care in the face of serious illness? What are the best practices for planning and provision of a spectrum of needed services and support during the dying process and afterwards? We extend a conversation important for formal and informal network members to transform the culture of ACP, death, dying, and bereavement for diverse vulnerable populations. For this symposium, we will present information on ACP and care for LGBT populations and older Latinos, those living in long-term care settings, and persons receiving Adult Protective Services (APS). We will discuss strategies for synergy, collaboration, and advocacy among persons with advanced illness and their formal and informal care networks as a means of reducing health disparities and promoting self-determination in the midst of advanced illness challenges. Oxford University Press 2019-11-08 /pmc/articles/PMC6846603/ http://dx.doi.org/10.1093/geroni/igz038.643 Text en © The Author(s) 2019. Published by Oxford University Press on behalf of The Gerontological Society of America. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Session 1000 (Symposium)
Hopp, Faith P
Nedjat-Haiem, Frances R
INTEREST GROUP SESSION—HOSPICE, PALLIATIVE AND END-OF-LIFE CARE: ADDRESSING ADVANCED ILLNESS CHALLENGES THROUGH SYNERGY, PLANNING, COLLABORATION, AND ADVOCACY
title INTEREST GROUP SESSION—HOSPICE, PALLIATIVE AND END-OF-LIFE CARE: ADDRESSING ADVANCED ILLNESS CHALLENGES THROUGH SYNERGY, PLANNING, COLLABORATION, AND ADVOCACY
title_full INTEREST GROUP SESSION—HOSPICE, PALLIATIVE AND END-OF-LIFE CARE: ADDRESSING ADVANCED ILLNESS CHALLENGES THROUGH SYNERGY, PLANNING, COLLABORATION, AND ADVOCACY
title_fullStr INTEREST GROUP SESSION—HOSPICE, PALLIATIVE AND END-OF-LIFE CARE: ADDRESSING ADVANCED ILLNESS CHALLENGES THROUGH SYNERGY, PLANNING, COLLABORATION, AND ADVOCACY
title_full_unstemmed INTEREST GROUP SESSION—HOSPICE, PALLIATIVE AND END-OF-LIFE CARE: ADDRESSING ADVANCED ILLNESS CHALLENGES THROUGH SYNERGY, PLANNING, COLLABORATION, AND ADVOCACY
title_short INTEREST GROUP SESSION—HOSPICE, PALLIATIVE AND END-OF-LIFE CARE: ADDRESSING ADVANCED ILLNESS CHALLENGES THROUGH SYNERGY, PLANNING, COLLABORATION, AND ADVOCACY
title_sort interest group session—hospice, palliative and end-of-life care: addressing advanced illness challenges through synergy, planning, collaboration, and advocacy
topic Session 1000 (Symposium)
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6846603/
http://dx.doi.org/10.1093/geroni/igz038.643
work_keys_str_mv AT hoppfaithp interestgroupsessionhospicepalliativeandendoflifecareaddressingadvancedillnesschallengesthroughsynergyplanningcollaborationandadvocacy
AT nedjathaiemfrancesr interestgroupsessionhospicepalliativeandendoflifecareaddressingadvancedillnesschallengesthroughsynergyplanningcollaborationandadvocacy