Cargando…

Domains of planning for future long‐term care of adults with intellectual and developmental disabilities: Parent and sibling perspectives

BACKGROUND: Research shows that adults with intellectual and developmental disabilities (IDD) increasingly outlive caregivers, who often struggle to plan for the future and have little support and knowledge surrounding long‐term care planning. METHODS: The study team conducted interviews with parent...

Descripción completa

Detalles Bibliográficos
Autores principales:	Lindahl, Jane, Stollon, Natalie, Wu, Katherine, Liang, Angela, Changolkar, Sujatha, Steinway, Caren, Trachtenberg, Symme, Coccia, Audrey, Devaney, Maureen, Jan, Sophia
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2019
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6850586/ https://www.ncbi.nlm.nih.gov/pubmed/31012229 http://dx.doi.org/10.1111/jar.12600

Ejemplares similares

The Crisis Close at Hand: How COVID-19 Challenges Long-Term Care Planning for Adults with Intellectual Disability
por: Wright, Charmaine, et al.
Publicado: (2020)

Identifying key components of a web‐based long term care planning intervention for family caregivers of individuals with intellectual/developmental disabilities
por: Chicas, Vanessa E., et al.
Publicado: (2022)

Demographic and Parental Factors Associated With Developmental Outcomes in Children With Intellectual Disabilities
por: Vilaseca, Rosa, et al.
Publicado: (2019)

Intellectual and Developmental Disabilities: Eugenics
por: Grenon, Ingrid, et al.
Publicado: (2014)

Recent Trends and Future Directions in Research Regarding Parents with Intellectual and Developmental Disabilities
por: Feldman, Maurice A., et al.
Publicado: (2020)

Quality of life and health-promoting lifestyles for parents of children with intellectual and developmental disabilities
por: Jeoung, Bogja
Publicado: (2022)

Subjective Poverty Moderates the Association Between Carer Status and Psychological Outcomes of Adult Siblings of People with Intellectual and Developmental Disabilities
por: Hayden, Nikita K., et al.
Publicado: (2022)

Intellectual and Developmental Disabilities: Male Health
por: Merrick, Joav, et al.
Publicado: (2014)

Intellectual and Developmental Disability: Healthcare Financing
por: Ervin, David A., et al.
Publicado: (2014)

Editorial: Developmental delay and intellectual disability
por: Banerjee, Santasree, et al.
Publicado: (2022)

Caregiving, intellectual disability, and dementia: Report of the Summit Workgroup on Caregiving and Intellectual and Developmental Disabilities
por: Heller, Tamar, et al.
Publicado: (2018)

COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability: longitudinal before and during lockdown design
por: Bailey, T., et al.
Publicado: (2021)

Women’s Experiences Caring for Their Husbands’ Siblings With Developmental Disabilities
por: Kuo, Yeh-chen
Publicado: (2015)

Dental treatment under general anesthesia in an intellectually disabled child with intellectually disabled parents
por: Han, Jeong-Hwa, et al.
Publicado: (2016)

Healthcare for Persons with Intellectual and Developmental Disability in the Community
por: Ervin, David A., et al.
Publicado: (2014)

Polypharmacy in a Patient With Intellectual and Developmental Disabilities
por: Raj, Rishi, et al.
Publicado: (2022)

Testicular Torsion in Patients With Intellectual and Developmental Disabilities
por: Shields, Lisa B. E., et al.
Publicado: (2021)

Special issue on pain and intellectual and developmental disabilities
por: Burkitt, Chantel C., et al.
Publicado: (2022)

Quality of life in people with intellectual and developmental disabilities
por: Gómez, Laura E.
Publicado: (2022)

Housing in Delaware for the Intellectual and Developmental Disabilities Population
por: Roberts, Jody A., et al.
Publicado: (2023)

RANZCP Commitment to People With Intellectual and Developmental Disability
por: Moore, Elizabeth
Publicado: (2023)

Depression and anxiety in parents of children with intellectual and developmental disabilities: A systematic review and meta-analysis
por: Scherer, Nathaniel, et al.
Publicado: (2019)

The Birth of a Child with Disability. Coping by Parents and Siblings
por: Kandel, Isack, et al.
Publicado: (2003)

Aspects of the minds of mothers of children with developmental but no intellectual disabilities and the nature of these disabilities
por: Yumoto, Akiha, et al.
Publicado: (2020)

Parents with Intellectual Disability in a Population Context
por: Llewellyn, Gwynnyth, et al.
Publicado: (2015)

Parenting Sense of Competence in Parents of Children With and Without Intellectual Disability
por: Jandrić, Sanja, et al.
Publicado: (2021)

Two Genetic Mechanisms in Two Siblings with Intellectual Disability, Autism Spectrum Disorder, and Psychosis
por: Huang, Yu-Shu, et al.
Publicado: (2022)

Associations between parenting strategies and BMI percentile among Latino children and youth with intellectual and developmental disabilities
por: Magaña, Sandy, et al.
Publicado: (2023)

Intellectual and Developmental Disabilities: Denmark, Normalization, and De-Institutionalization
por: Merrick, Joav, et al.
Publicado: (2014)

Frailty and Intellectual and Developmental Disabilities: a Scoping Review
por: McKenzie, Katherine, et al.
Publicado: (2016)

The Arab Community in Israel Coping with Intellectual and Developmental Disability
por: Kandel, Isack, et al.
Publicado: (2004)

Genomic diagnosis for children with intellectual disability and/or developmental delay
por: Bowling, Kevin M., et al.
Publicado: (2017)

Yoga for Functional Fitness in Adults with Intellectual and Developmental Disabilities
por: Reina, Anita M, et al.
Publicado: (2020)

Mask Compliance Training for Individuals With Intellectual and Developmental Disabilities
por: Frank-Crawford, Michelle A., et al.
Publicado: (2021)

Intellectual Developmental Disabilities:: Definitions, Diagnosis, and Delivery of Care
por: Bartoshesky, Louis E., et al.
Publicado: (2021)

Integrated biopsychosocial pain research in intellectual and developmental disability
por: Byiers, Breanne
Publicado: (2022)

Learning science alongside peers with intellectual and developmental disabilities
por: Rubenzer, Kaelin N., et al.
Publicado: (2023)

Pregnancy complications and maternal birth outcomes in women with intellectual and developmental disabilities in Wisconsin Medicaid
por: Rubenstein, Eric, et al.
Publicado: (2020)

Motor proficiency differences among students with intellectual disabilities, autism, and developmental disability
por: Jeoung, Bogja
Publicado: (2018)

Novel Compound Heterozygous Mutations in the TRAPPC9 Gene in Two Siblings With Autism and Intellectual Disability
por: Hnoonual, Areerat, et al.
Publicado: (2019)

Cannot write session to /tmp/vufind_sessions/sess_d4c99leic0dbfcclt285eheft6