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From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies
INTRODUCTION: Haemophilia A is a chronic disease requiring frequent intravenous infusions of recombinant factor VIII. Previous studies have shown that challenges associated with current treatments may have significant impacts on quality of life (QoL) that are as important as the health outcomes conf...
Autores principales: | Wiley, Ryan E., Khoury, Charles P., Snihur, Adrian W. K., Williams, Marni, Page, David, Graham, Nicole, Laudenbach, Lori, Milne‐Wren, Cindy, Stoffman, Jayson M. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6850753/ https://www.ncbi.nlm.nih.gov/pubmed/31016823 http://dx.doi.org/10.1111/hae.13754 |
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