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From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies

INTRODUCTION: Haemophilia A is a chronic disease requiring frequent intravenous infusions of recombinant factor VIII. Previous studies have shown that challenges associated with current treatments may have significant impacts on quality of life (QoL) that are as important as the health outcomes conf...

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Detalles Bibliográficos
Autores principales: Wiley, Ryan E., Khoury, Charles P., Snihur, Adrian W. K., Williams, Marni, Page, David, Graham, Nicole, Laudenbach, Lori, Milne‐Wren, Cindy, Stoffman, Jayson M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6850753/
https://www.ncbi.nlm.nih.gov/pubmed/31016823
http://dx.doi.org/10.1111/hae.13754

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