Cargando…
Development of a measure of genome sequencing knowledge for young people: The kids‐KOGS
Genome sequencing (GS) is increasingly being used to diagnose rare diseases in paediatric patients; however, no measures exist to evaluate their knowledge of this technology. We aimed to develop a robust measure of knowledge of GS (the kids‐KOGS') suitable for use in the paediatric setting as w...
Autores principales: | Lewis, Celine, Loe, Bao S., Sidey‐Gibbons, Chris, Patch, Christine, Chitty, Lyn S., Sanderson, Saskia C. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Blackwell Publishing Ltd
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6851564/ https://www.ncbi.nlm.nih.gov/pubmed/31323115 http://dx.doi.org/10.1111/cge.13607 |
Ejemplares similares
-
Development and mixed-methods evaluation of an online animation for young people about genome sequencing
por: Lewis, Celine, et al.
Publicado: (2020) -
Delivering genome sequencing in clinical practice: an interview study with healthcare professionals involved in the 100 000 Genomes Project
por: Sanderson, Saskia C, et al.
Publicado: (2019) -
Parents’ motivations, concerns and understanding of genome sequencing: a qualitative interview study
por: Lewis, Celine, et al.
Publicado: (2020) -
Opening the “black box” of informed consent appointments for genome sequencing: a multisite observational study
por: Sanderson, Saskia C., et al.
Publicado: (2018) -
Knowledge, attitudes and decision regret: a longitudinal survey study of participants offered genome sequencing in the 100,000 Genomes Project
por: Peter, Michelle, et al.
Publicado: (2023)