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French‐style genetics v. 2.0: The “e‐CohortE” project

In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing mass...

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Detalles Bibliográficos
Autores principales: Stoeklé, Henri‐Corto, Bollet, Marc, Cobat, Aurélie, Charlier, Philippe, Bloch, Oudy Ch., Flatot, Jérôme, Draghi, Clément, Tolyan, Valérie, Hervé, Christian, Desvaux, Pierre, Uzan, Laurent, Grynberg, Michaël, Alcaïs, Alexandre, Tolédano, Alain, Vogt, Guillaume
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Blackwell Publishing Ltd 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6851966/
https://www.ncbi.nlm.nih.gov/pubmed/31254389
http://dx.doi.org/10.1111/cge.13595
Descripción
Sumario:In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing massive amounts of data for medical, scientific and commercial exploitation, and for genetic use in particular. French law does not currently allow these foreign private companies to develop on French national territory and also forbids the creation of similar entities in France. However, at least in theory, this same law does not preclude the creation of new types of cohorts in France inspired by the success of two‐sided markets but retaining features specific to the French healthcare management system. We propose an optimal solution for France, for genomic studies associated with multi‐subject questionnaires, still purely theoretical for the moment: the development, with no need for any change in the law, of France's own version of “Genetics v.2.0”: “e‐CohortE.”