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French‐style genetics v. 2.0: The “e‐CohortE” project

In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing mass...

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Autores principales: Stoeklé, Henri‐Corto, Bollet, Marc, Cobat, Aurélie, Charlier, Philippe, Bloch, Oudy Ch., Flatot, Jérôme, Draghi, Clément, Tolyan, Valérie, Hervé, Christian, Desvaux, Pierre, Uzan, Laurent, Grynberg, Michaël, Alcaïs, Alexandre, Tolédano, Alain, Vogt, Guillaume
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Blackwell Publishing Ltd 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6851966/
https://www.ncbi.nlm.nih.gov/pubmed/31254389
http://dx.doi.org/10.1111/cge.13595
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author Stoeklé, Henri‐Corto
Bollet, Marc
Cobat, Aurélie
Charlier, Philippe
Bloch, Oudy Ch.
Flatot, Jérôme
Draghi, Clément
Tolyan, Valérie
Hervé, Christian
Desvaux, Pierre
Uzan, Laurent
Grynberg, Michaël
Alcaïs, Alexandre
Tolédano, Alain
Vogt, Guillaume
author_facet Stoeklé, Henri‐Corto
Bollet, Marc
Cobat, Aurélie
Charlier, Philippe
Bloch, Oudy Ch.
Flatot, Jérôme
Draghi, Clément
Tolyan, Valérie
Hervé, Christian
Desvaux, Pierre
Uzan, Laurent
Grynberg, Michaël
Alcaïs, Alexandre
Tolédano, Alain
Vogt, Guillaume
author_sort Stoeklé, Henri‐Corto
collection PubMed
description In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing massive amounts of data for medical, scientific and commercial exploitation, and for genetic use in particular. French law does not currently allow these foreign private companies to develop on French national territory and also forbids the creation of similar entities in France. However, at least in theory, this same law does not preclude the creation of new types of cohorts in France inspired by the success of two‐sided markets but retaining features specific to the French healthcare management system. We propose an optimal solution for France, for genomic studies associated with multi‐subject questionnaires, still purely theoretical for the moment: the development, with no need for any change in the law, of France's own version of “Genetics v.2.0”: “e‐CohortE.”
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spelling pubmed-68519662019-11-18 French‐style genetics v. 2.0: The “e‐CohortE” project Stoeklé, Henri‐Corto Bollet, Marc Cobat, Aurélie Charlier, Philippe Bloch, Oudy Ch. Flatot, Jérôme Draghi, Clément Tolyan, Valérie Hervé, Christian Desvaux, Pierre Uzan, Laurent Grynberg, Michaël Alcaïs, Alexandre Tolédano, Alain Vogt, Guillaume Clin Genet Original Articles In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing massive amounts of data for medical, scientific and commercial exploitation, and for genetic use in particular. French law does not currently allow these foreign private companies to develop on French national territory and also forbids the creation of similar entities in France. However, at least in theory, this same law does not preclude the creation of new types of cohorts in France inspired by the success of two‐sided markets but retaining features specific to the French healthcare management system. We propose an optimal solution for France, for genomic studies associated with multi‐subject questionnaires, still purely theoretical for the moment: the development, with no need for any change in the law, of France's own version of “Genetics v.2.0”: “e‐CohortE.” Blackwell Publishing Ltd 2019-07-11 2019-10 /pmc/articles/PMC6851966/ /pubmed/31254389 http://dx.doi.org/10.1111/cge.13595 Text en © 2019 The Authors. Clinical Genetics published by John Wiley & Sons A/S. Published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Stoeklé, Henri‐Corto
Bollet, Marc
Cobat, Aurélie
Charlier, Philippe
Bloch, Oudy Ch.
Flatot, Jérôme
Draghi, Clément
Tolyan, Valérie
Hervé, Christian
Desvaux, Pierre
Uzan, Laurent
Grynberg, Michaël
Alcaïs, Alexandre
Tolédano, Alain
Vogt, Guillaume
French‐style genetics v. 2.0: The “e‐CohortE” project
title French‐style genetics v. 2.0: The “e‐CohortE” project
title_full French‐style genetics v. 2.0: The “e‐CohortE” project
title_fullStr French‐style genetics v. 2.0: The “e‐CohortE” project
title_full_unstemmed French‐style genetics v. 2.0: The “e‐CohortE” project
title_short French‐style genetics v. 2.0: The “e‐CohortE” project
title_sort french‐style genetics v. 2.0: the “e‐cohorte” project
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6851966/
https://www.ncbi.nlm.nih.gov/pubmed/31254389
http://dx.doi.org/10.1111/cge.13595
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