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French‐style genetics v. 2.0: The “e‐CohortE” project
In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing mass...
Autores principales: | , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Blackwell Publishing Ltd
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6851966/ https://www.ncbi.nlm.nih.gov/pubmed/31254389 http://dx.doi.org/10.1111/cge.13595 |
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author | Stoeklé, Henri‐Corto Bollet, Marc Cobat, Aurélie Charlier, Philippe Bloch, Oudy Ch. Flatot, Jérôme Draghi, Clément Tolyan, Valérie Hervé, Christian Desvaux, Pierre Uzan, Laurent Grynberg, Michaël Alcaïs, Alexandre Tolédano, Alain Vogt, Guillaume |
author_facet | Stoeklé, Henri‐Corto Bollet, Marc Cobat, Aurélie Charlier, Philippe Bloch, Oudy Ch. Flatot, Jérôme Draghi, Clément Tolyan, Valérie Hervé, Christian Desvaux, Pierre Uzan, Laurent Grynberg, Michaël Alcaïs, Alexandre Tolédano, Alain Vogt, Guillaume |
author_sort | Stoeklé, Henri‐Corto |
collection | PubMed |
description | In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing massive amounts of data for medical, scientific and commercial exploitation, and for genetic use in particular. French law does not currently allow these foreign private companies to develop on French national territory and also forbids the creation of similar entities in France. However, at least in theory, this same law does not preclude the creation of new types of cohorts in France inspired by the success of two‐sided markets but retaining features specific to the French healthcare management system. We propose an optimal solution for France, for genomic studies associated with multi‐subject questionnaires, still purely theoretical for the moment: the development, with no need for any change in the law, of France's own version of “Genetics v.2.0”: “e‐CohortE.” |
format | Online Article Text |
id | pubmed-6851966 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | Blackwell Publishing Ltd |
record_format | MEDLINE/PubMed |
spelling | pubmed-68519662019-11-18 French‐style genetics v. 2.0: The “e‐CohortE” project Stoeklé, Henri‐Corto Bollet, Marc Cobat, Aurélie Charlier, Philippe Bloch, Oudy Ch. Flatot, Jérôme Draghi, Clément Tolyan, Valérie Hervé, Christian Desvaux, Pierre Uzan, Laurent Grynberg, Michaël Alcaïs, Alexandre Tolédano, Alain Vogt, Guillaume Clin Genet Original Articles In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing massive amounts of data for medical, scientific and commercial exploitation, and for genetic use in particular. French law does not currently allow these foreign private companies to develop on French national territory and also forbids the creation of similar entities in France. However, at least in theory, this same law does not preclude the creation of new types of cohorts in France inspired by the success of two‐sided markets but retaining features specific to the French healthcare management system. We propose an optimal solution for France, for genomic studies associated with multi‐subject questionnaires, still purely theoretical for the moment: the development, with no need for any change in the law, of France's own version of “Genetics v.2.0”: “e‐CohortE.” Blackwell Publishing Ltd 2019-07-11 2019-10 /pmc/articles/PMC6851966/ /pubmed/31254389 http://dx.doi.org/10.1111/cge.13595 Text en © 2019 The Authors. Clinical Genetics published by John Wiley & Sons A/S. Published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Articles Stoeklé, Henri‐Corto Bollet, Marc Cobat, Aurélie Charlier, Philippe Bloch, Oudy Ch. Flatot, Jérôme Draghi, Clément Tolyan, Valérie Hervé, Christian Desvaux, Pierre Uzan, Laurent Grynberg, Michaël Alcaïs, Alexandre Tolédano, Alain Vogt, Guillaume French‐style genetics v. 2.0: The “e‐CohortE” project |
title | French‐style genetics v. 2.0: The “e‐CohortE” project |
title_full | French‐style genetics v. 2.0: The “e‐CohortE” project |
title_fullStr | French‐style genetics v. 2.0: The “e‐CohortE” project |
title_full_unstemmed | French‐style genetics v. 2.0: The “e‐CohortE” project |
title_short | French‐style genetics v. 2.0: The “e‐CohortE” project |
title_sort | french‐style genetics v. 2.0: the “e‐cohorte” project |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6851966/ https://www.ncbi.nlm.nih.gov/pubmed/31254389 http://dx.doi.org/10.1111/cge.13595 |
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